Table 2 |
||
Demographics of family members involved in qualitative data collection in phases I and II | ||
Phase 1 | Phase 2 | |
Total cases, n patients (caregivers)* | 11 (13) | 10 (11) |
Age of patients (median) years | 23, 27, 31, 45, 49, 53, 54, 59, 71, 79, 87 (53) | 40, 43,52, 57, 59, 59, 62, 63, 80,83 (59) |
Gender of patients | 4 women, 7 men | 4 female, 6 male |
Gender of family members | 6 women, 7 men | 9 female, 2 male |
Diagnosis of patients | Neurological injury (n =4); infection (pneumonia, malaria) (n = 2); hypoxic brain injury (n = 2); malignancy (n = 2); COPD plus pneumonia (n=1) | COPD plus pneumonia (n = 2); subarachnoid hemorrhage (n = 2); C4 level lesion (n = 1); gastro-intestinal bleed (n = 1); hypoxic brain injury (n = 1); cardiac arrest secondary to PE (n = 1); acute subdural hematoma (n = 1); dissecting aortic aneurysm (n=1). |
Age of interviewee (median) years | 28,30,30, 35, 36, 44, 47, 53 ,53, 53, 56, 59,67 (47) | 30, 36, 40, 43, 46, 48, 50, 50, 54, 62, 77 (48) |
Relative travel time to hospital | <30 minutes (n = 4); 30 minutes to <1 hour (n = 6); ≥1 hour (n = 3); | <30 minutes (n = 2); 30 minutes to <1 hour (n = 3); ≥1 hour (n = 6 (one of these was staying locally within 30 minutes travel time)); |
Ethnicity of family members | White British (n = 9); Mixed Caribbean (n = 2); Asian (n = 1); Afro-Caribbean (n = 1); | White British (n = 11) |
Religion of family members | No religion (n = 5); Christian (n = 6); Muslim (n = 2); | No religion (n = 4); Christian (n = 7) |
Occupation of family members | Nurse (n = 2); self-employed (n = 1); civil servant (n=1); clinic supervisor (n = 1); degree-level qualification (n = 1); care manager (n = 1); lorry driver (n = 1); carer (n = 1); masters-level qualification (n = 1); technical instructor (n = 1); manager higher education (n=1); retired executive (n=1) | No paid employment (n = 4); secretary (n = 1); waitress (n = 1); carer (n = 1); security guard (n = 1); actuary (n = 1); teaching assistant (n = 1); sales consultant (n = 1) |
Relationship to patient | Partner (n = 3); child (n = 6); sibling (n = 1); parent (n = 3) | Partner (n = 5); child (n = 4); sibling (n = 2) |
* note in each group for one patient two family members wanted to be interviewed.
Abbreviations: COPD chronic obstructive pulmonary disease, PE pulmonary embolism.
Higginson et al.
Higginson et al. BMC Medicine 2013 11:213 doi:10.1186/1741-7015-11-213