Table 2

Demographics of family members involved in qualitative data collection in phases I and II
Phase 1 Phase 2
Total cases, n patients (caregivers)* 11 (13) 10 (11)
Age of patients (median) years 23, 27, 31, 45, 49, 53, 54, 59, 71, 79, 87 (53) 40, 43,52, 57, 59, 59, 62, 63, 80,83 (59)
Gender of patients 4 women, 7 men 4 female, 6 male
Gender of family members 6 women, 7 men 9 female, 2 male
Diagnosis of patients Neurological injury (n =4); infection (pneumonia, malaria) (n = 2); hypoxic brain injury (n = 2); malignancy (n = 2); COPD plus pneumonia (n=1) COPD plus pneumonia (n = 2); subarachnoid hemorrhage (n = 2); C4 level lesion (n = 1); gastro-intestinal bleed (n = 1); hypoxic brain injury (n = 1); cardiac arrest secondary to PE (n = 1); acute subdural hematoma (n = 1); dissecting aortic aneurysm (n=1).
Age of interviewee (median) years 28,30,30, 35, 36, 44, 47, 53 ,53, 53, 56, 59,67 (47) 30, 36, 40, 43, 46, 48, 50, 50, 54, 62, 77 (48)
Relative travel time to hospital <30 minutes (n = 4); 30 minutes to <1 hour (n = 6); ≥1 hour (n = 3); <30 minutes (n = 2); 30 minutes to <1 hour (n = 3); ≥1 hour (n = 6 (one of these was staying locally within 30 minutes travel time));
Ethnicity of family members White British (n = 9); Mixed Caribbean (n = 2); Asian (n = 1); Afro-Caribbean (n = 1); White British (n = 11)
Religion of family members No religion (n = 5); Christian (n = 6); Muslim (n = 2); No religion (n = 4); Christian (n = 7)
Occupation of family members Nurse (n = 2); self-employed (n = 1); civil servant (n=1); clinic supervisor (n = 1); degree-level qualification (n = 1); care manager (n = 1); lorry driver (n = 1); carer (n = 1); masters-level qualification (n = 1); technical instructor (n = 1); manager higher education (n=1); retired executive (n=1) No paid employment (n = 4); secretary (n = 1); waitress (n = 1); carer (n = 1); security guard (n = 1); actuary (n = 1); teaching assistant (n = 1); sales consultant (n = 1)
Relationship to patient Partner (n = 3); child (n = 6); sibling (n = 1); parent (n = 3) Partner (n = 5); child (n = 4); sibling (n = 2)

* note in each group for one patient two family members wanted to be interviewed.

Abbreviations: COPD chronic obstructive pulmonary disease, PE pulmonary embolism.

Higginson et al.

Higginson et al. BMC Medicine 2013 11:213   doi:10.1186/1741-7015-11-213

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