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Open Access Research article

Guideline adherence and patient satisfaction in the treatment of inflammatory bowel disorders – an evaluation study

Claudia Pieper1*, Sebastian Haag2, Stefan Gesenhues3, Gerald Holtmann4, Guido Gerken2 and Karl-Heinz Jöckel1*

Author Affiliations

1 Institute for Medical Informatics, Biometry and Epidemiology, University Hospital of Essen, Essen, Germany

2 Deptartment of Gastroenterology and Hepatology, University Hospital of Essen, Essen, Germany

3 Institute for General Medicine, University Hospital of Essen, Essen, Germany

4 Department of Gastroenterology, Hepatology and General Internal Medicine, Royal Adelaide Hospital, University of Adelaide, SA, Australia

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BMC Health Services Research 2009, 9:17  doi:10.1186/1472-6963-9-17

Published: 27 January 2009

Abstract

Background

Crohn's disease (CD) and ulcerative colitis (UC) are the most frequent inflammatory bowel disorders (IBD). IBD cause a significant burden to society due to extensive health care utilization from the first clinical symptoms until diagnosis and thereafter due to direct and indirect costs. Besides the socio-economic impact of CD and UC, gastrointestinal and extraintestinal symptoms affect quality of life, but there is remarkably little data about the quality of treatment as assessed by patient satisfaction, quality of life and adherence to guidelines. Thus the aim of this study was to identify variables that influence quality of treatment and quality of life as well as patient satisfaction.

Methods

The Essener Zirkel Study was a cross sectional study of 86 IBD-patients with a confirmed diagnosis of CD or UC. They were recruited at primary, secondary and tertiary care settings. Quality of treatment, quality of life and patient satisfaction were evaluated. Consulting behaviour and number of examinations, duration of disease and variables regarding adherence to guidelines were evaluated, too.

Results

59 (69%) patients had CD and 27 had UC (31%). 19% spent more than four years until the suspected diagnosis of IBD was confirmed and visited more than five physicians. All patients showed a significantly reduced quality of life compared to the 1998 German normative population. In spite of being under medical treatment, nearly half of the patients suffered from strong quality of life restricting symptoms. Over all, 35% described their treatment as moderate or bad. Patients who consulted psychotherapists and non-medical practitioners suffered significantly less from depression.

Conclusion

Besides structural deficiencies due to the health care policy, we revealed the adherence to guidelines to be a problem area. Our findings support the assumption, that providing better health care and especially maintaining constant patient-physician communication improves patient satisfaction.