Table 1

Quantitative data collected in the Care Navigation randomised controlled trial
Type of data Variables Data source Time of data collection
Demographic and risk factor variables Age, sex, Indigenous status, marital status Electronic report from NSW Health database Baseline.
Literacy, language, ethnicity, income, education, BMI, living arrangements smoking, alcohol, physical and mental disability, comorbidities Phone questionnaire-manual data entry 12 months.
Psychosocial variables Quality of life: EQ-5D questionnaire [16] Phone questionnaire-manual data entry Baseline, 12 months, 24 months.
Patient experience: Picker patient experience questionnaire [18] Mailed paper questionnaire-manual data entry 12 months.
Hospital utilisation variables For each emergency presentation within the follow-up period: Triage category, arrival date and time, departure date and time, mode of separation, presenting problem and diagnosis, UDAG status Electronic report from NSW Health database 24 months.
For each hospital admission within the follow-up period: Arrival date and time, departure date and time, diagnosis related group (DRG), service related group (SRG), investigations conducted Electronic report from NSW Health database 24 months.
Community health utilisation variables For each community referral within the follow-up period: Referral service type, appointment date and time, treatment administered, attendance and transport Electronic report from NSW Health database 24 months.
Medication utilisation variables Clinical service utilisation (MBS) Electronic report from Statistics Medicare Australia 24 months.
Pharmaceutical utilisation (PBS) Phone questionnaire (manual data entry) Baseline, 12 months, 24 months.
Adherence to medications [19]
Mortality data Date of death Electronic report from the National Death Index (Australian Institute of Health and Welfare) 24 months.

Plant et al.

Plant et al. BMC Health Services Research 2013 13:164   doi:10.1186/1472-6963-13-164

Open Data