Table 3

Endpoints
Quality of life during the last 3 days of life and Quality of dying Process of care Satisfaction with health care in the last 3 days of life
Quality of life: Perceptions by relatives and health care providers of quality of life during last 3 days of life: Global rate (0–10) Technical process Appropriate use of nursing interventions Changes in treatment policy/NTBR Patient satisfaction with care: Perceptions by relatives: Preferences honoured regarding way of dying Satisfaction with:
Physical comfort Psychological well-being Social functioning and well-being Spiritual well-being, being in peace Symptom management Recognition of imminent death Referrals to multidisciplinary consultation team - technical process
- decision making process
- interpersonal and communication style
Quality of dying of patient Perceptions by family and health are providers of quality of dying of patient: Global rate (0–10) Relatives’ satisfaction with care Satisfaction with:
- technical process
Life closure and death preparation Circumstances of death - decision making process
- timeliness and usefulness of information and counselling
- interpersonal and communication style
Quality of life of family Health status Grief resolution - extent to which patient/family preferences honoured
- extent to which opportunities provided to patient to complete life meaningfully
- present at patients’ death

Derived and adapted from Stewart et al. (1999) Conceptual model of factors affecting quality and length of life of dying patients and their families.

Witkamp et al.

Witkamp et al. BMC Health Services Research 2013 13:115   doi:10.1186/1472-6963-13-115

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