Table 1

Participants' knowledge and decision measures related to risk-reducing mastectomy (RM) at follow-up intervals

Case #1

Case #2

Case #3


Measure

Baseline

1st Follow-up

2nd Follow-up

Baseline

1st Follow-up

2nd Follow-up

Baseline

1st Follow-up

2nd Follow-up


Knowledge score1

6/10

8/10

9/10

9/10

9/10

9/10

7/10

7/10

7/10

Perceived level of knowledge of RM2

5/10

6/10

8/10

7/10

5/10

5/10

7/10

7/10

9/10

Perceived level of knowledge of breast screening2

4/10

7/10

8/10

7/10

5/10

7/10

8/10

8/10

6/10

Decision conflict3

2.42

2.58

2.58

1.0

1.83

3.33

2.16

1.83

2.33

Confidence with decision making4

n/a

9.2

8.2

n/a

8.0

5.0

n/a

9.5

9.5

Decision status5

Leaning to RM

Leaning to RM

Decided no RM

Leaning to RM

Leaning to RM

Undecided

Decided yes RM

Leaning to RM

Had RM


1Knowledge was measured using a series of ten true/false questions that were developed to assess women's knowledge about RM.

2Participants rated their perceived level of knowledge about RM and breast cancer screening on a ten point scale, where 1 is poor and 10 is excellent.

3Decision Conflict Scale [22,23] – A 12-item 5 point scale that assesses four areas of decision making: (uncertainty, feeling uninformed, clarity of values, and feeling unsupported). Scores may range from 1 (low decisional conflict) up to 5 (high decisional conflict).

4Confidence with Decision Making [24] – A 4-item 11 point scale that assesses level of confidence that advantages and disadvantages are understood, that a decision will be made, and of talking with health care providers about RM. Scores may range from 0 (not at all confident) to 10 (completely confident).

5Decision status [23]: Participants were asked to select the one of the following statements that best described their current thoughts about RM: You have decided to have prophylactic mastectomy; You are leaning towards having prophylactic mastectomy, but have not made a final decision; You have not decided one way or the other about prophylactic mastectomy; You are leaning towards not having prophylactic mastectomy, but have not made a final decision; You have decided not to have prophylactic mastectomy.

McCullum et al. BMC Women's Health 2007 7:3   doi:10.1186/1472-6874-7-3

Open Data