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Open Access Highly Accessed Research article

Palliative care for cancer patients in a primary health care setting: Bereaved relatives' experience, a qualitative group interview study

Mette Asbjoern Neergaard1*, Frede Olesen1, Anders Bonde Jensen2 and Jens Sondergaard1

Author Affiliations

1 The Research Unit for General Practice, University of Aarhus, Denmark

2 Department of Oncology, Aarhus University Hospital, Denmark

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BMC Palliative Care 2008, 7:1  doi:10.1186/1472-684X-7-1

Published: 15 January 2008

Abstract

Background

Knowledge about the quality and organisation of care to terminally ill cancer patients with a relatives' view in a primary health care setting is limited.

The aim of the study is to analyse experiences and preferences of bereaved relatives to terminally ill cancer patients in a primary care setting to explore barriers and facilitators for delivery of good palliative home care.

Methods

Three focus group interviews with fourteen bereaved relatives in Aarhus County, Denmark.

Results

Three main categories of experience were identified: 1) The health professionals' management, where a need to optimize was found. 2) Shared care, which was lacking. 3) The relatives' role, which needs an extra focus.

Conclusion

Relatives experience insufficient palliative care mainly due to organizational and cultural problems among professionals. Palliative care in primary care in general needs improvement and attention should be drawn to the "professionalization" of the relatives and the need to strike a balance between their needs, wishes and resources in end-of-life care and bereavement.