Table 3

Prevalence of burden within religious & spiritual, independence, family and social and treatment sub-scales by GSF or non-GSF criteria
GSF group Non-GSF group
Subscale and item Very much Quite a bit A little bit Not at all Very much Quite a bit A little bit Not at all Missing
n(%) n(%) n(%) n(%) n(%) n(%) n(%) n(%) n(%)
Religious & Spiritual
Thoughts about death or dying. 9 (5.1) 11 (6.2) 32 (18.1) 125(70.6) 15 (4.8) 17 (5.4) 42 (13.5) 238 (76.3) 25 (4.9)
Religious or spiritual needs not being met. 4 (2.2) 5 (2.8) 13 (7.3) 157 (87.7) 4 (1.3) 4 (1.3) 13 (4.2) 287 (93.2) 27 (5.3)
Independence
Losing your independence. 36(20.1) 39(21.8) 38 (21.2) 66 (36.9) 49 (15.4) 29 (9.1) 69 (21.6) 172 (53.9) 16 (3.1)
Changes in your ability to carry out usual activities. 32(17.6) 42 (23.1) 42(23.1) 66 (36.3) 40 (12.7) 49 (15.6) 62 (19.7) 163 (51.9) 18 (3.5)
Changes in your ability to carry out usual household tasks. 36 (20.1) 37 (20.7) 34 (19) 72 (40.2) 38 (12.1) 50 (16) 58 (18.5) 167 (53.4) 22 (4.3)
Family & Social
Feeling that people do not understand what you want. 7 (3.8) 33 (18.1) 38 (20.9) 104 (57.1) 20 (6.3) 24 (7.6) 47 (14.9) 225 (71.2) 16 (3.1)
The effect that your illness is having on your family and other people. 34 (18.7) 55 (30.2) 42 (23.1) 51 (28) 49 (15.3) 63 (19.6) 98 (30.5) 111 (34.6) 11 (2.1)
Lack of support from your family and other people. 6(3.3) 7 (3.9) 18 (9.9) 150 (82.9) 9 (2.8) 7 (2.2) 15 (4.7) 286 (90.2) 16 (3.1)
Needing more help than your family can give. 11 (6.3) 17 (9.7) 25 (14.3) 122 (69.7) 14 (4.5) 27 (8.6) 39 (12.4) 234 (74.5) 25 (4.9)
Treatment
Side effects from your treatments. 11 (6.2) 22 (12.4) 38 (21.5) 106 (59.9) 17 (5.4) 31 (9.9) 54 (17.3) 211 (67.4) 24 (4.7)
The long term effects of your treatment. 22 (12.4) 22 (12.4) 37 (20.8) 97 (54.5) 34 (10.8) 26 (8.2) 72 (22.8) 184 (58.2) 20 (3.9)

Ryan et al.

Ryan et al. BMC Palliative Care 2013 12:11   doi:10.1186/1472-684X-12-11

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