Table 1

Demographic characteristics of patients and adolescents
Patient characteristics (N=49) Adolescent characteristics(N=86)
Mean age 44.31 (sd 6.40; range 29–65) Mean age 13.78 (sd 2.45; range 11–21)
Female 57.1% (n=28) Female 55.8% (n=48)
Cancer (n=49) Age groups (n=86)
 various cancers1 55.1% (n=27) Early adolescence (11–14 years) 64.0% (n=55)
 breast / gynecol. 26.5% (n=13) Late adolescence (15–18 years) 31.4% (n=27)
 digestive organs 18.4% (n=9) Young adulthood (19–21 years) 4.6% (n=4 )
First diagnosis (n=48)
 0-12 months ago 45.8% (n=22) Study centre2 Parents in palliative situation (n=43) Parents in other disease stages (n=43)
 >12 months ago 54.2% (n=26)
Specialised palliative care (n=47)
 yes 12.8% (n=6) Heidelberg-PM n=14 (16.3%) n=13 (15.1%)
 no 87.2% (n=41) Berlin-CAP n=9 (15.1%) n=13 (10.5%)
ECOG performance status4 (n=49) Hamburg-CAP n=13 (10.5%) n=9 (15.1%)
 0-1 61.2% (n=30) Leipzig-CAP n=7 (8.1%) n=6 (7.0%)
 2-4 38.8% (n=19) Magdeburg-CAP - n=2 (2.3%)

Note: 1 like blood or lung cancers (cell sizes each n<4); 2 PM (Psychosomatic Medicine), CAP (Child and Adolescent Psychiatry); 3 WHO-ECOG performance status from 0 (asymptomatic) to 4 (completely disabled).

Kühne et al.

Kühne et al. BMC Palliative Care 2012 11:21   doi:10.1186/1472-684X-11-21

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