Table 1

Outcome measures

Primary end-points

Secondary end-points


Location of death

Home death

Distribution of location of death (home, hospital, palliative care units, nursing home)


Use of specialized palliative care services Patients

Number of patients who received specialized palliative care services

Backgrounds of patients referred to specialized palliative care services


Patients

Quality of palliative care

Total score of 3 subscales of "physical care provided by physicians", "physical care provided by nurses", "psycho-existential care) of the Care Evaluation Scale

Care Evaluation Scale

-physical care provided by physicians

-physical care provided by nurses

-psycho-existential care

-help with decision-making

-coordination/consistency of care

Quality of life

Good Death Inventory

-physical and psychological comfort

-living in a favorite place

-maintaining hope and pleasure

-having a good relationship with medical staff

-not feeling a burden to others

-having a good relationship with the family

-having independence

-having environmental comfort

-being respected as an individual

-a feeling of fulfillment at life's completion

Pain

Brief Pain Inventory

Satisfaction

Satisfaction scale

Knowledge, beliefs, and concerns

Knowledge of opioids, Beliefs about palliative care, Concerns about home care

Feelings of support and security about cancer care in the region Bereaved family members

Sense of Security Scale


Bereaved family members

Quality of palliative care

Total score of 3 subscales of "physical care provided by physicians", "physical care provided by nurses", "psycho-existential care) of the Care Evaluation Scale

Care Evaluation Scale

-same as patient, and,

-help with decision making for family

-family care

Quality of life of the patient (proxy)

Good Death Inventory (same as patient)

Satisfaction

Satisfaction scale

Knowledge, beliefs, and concerns

Knowledge of opioids, Beliefs about palliative care, Concerns about home care

Feelings of support and security about cancer care in the region

Sense of Security Scale

Care burden

Caregiving Consequence Inventory

-Burden

Time spent at home

Time spent at home


Physicians and nurses

Palliative Care Knowledge Test

-philosophy, pain, dyspnea, delirium, and gastro-intestinal symptoms

Palliative Care Difficulty Scale

-expert support, alleviating symptoms, community coordination, communication in multidisciplinary teams, and communication with patients and families

Palliative Care Self-reported practice Scale


Morita et al. BMC Palliative Care 2012 11:2   doi:10.1186/1472-684X-11-2

Open Data