Table 1 |
|
| Summary of the major anticipated analyses of data from HAE-BOIS-Europe | |
| Data source | Analyses |
| Survey data |
Descriptive analyses, eg. · Treatments used · Medical resource utilization · Impact on work and school productivity · Reliance on volunteer and paid helpers · HADS scores and other HRQoL estimates |
| Potential categorizations of HAE severity (frequency, pain, duration, etc) | |
|
Estimated health utility weights for: · An acute HAE attack – based on survey responses mapped to the EQ-5D · Chronic disease – based on HADS scores mapped to the EQ-5D |
|
| Interviews |
Key concepts important to patients with HAE · Providing context to survey-derived quantitative findings · Providing input into the draft conceptual model of HAE burden of illness |
Bygum et al. BMC Dermatology 2012 12:4 doi:10.1186/1471-5945-12-4
