Table 1

Summary of the major anticipated analyses of data from HAE-BOIS-Europe
Data source Analyses
Survey data

Descriptive analyses, eg.

· Treatments used

· Medical resource utilization

· Impact on work and school productivity

· Reliance on volunteer and paid helpers

· HADS scores and other HRQoL estimates

Potential categorizations of HAE severity (frequency, pain, duration, etc)

Estimated health utility weights for:

· An acute HAE attack – based on survey responses mapped to the EQ-5D

· Chronic disease – based on HADS scores mapped to the EQ-5D

Interviews

Key concepts important to patients with HAE

· Providing context to survey-derived quantitative findings

· Providing input into the draft conceptual model of HAE burden of illness

Bygum et al.

Bygum et al. BMC Dermatology 2012 12:4   doi:10.1186/1471-5945-12-4

Open Data