Table 1 |
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Estimated prevalence and number of people with albinism by country |
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Author |
Country/Population* |
Study Details |
Prevalence |
Estimated Number in country** |
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|
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Kromberg et al.(11) |
South Africa/45,026,000 |
Cross-sectional study. Subjects were ascertained through all 120 schools, 6 health clinics and 2 hospitals in Soweto and interviewed; 213 albinism cases found; 206 interviewed |
1/3,900 |
11,545 |
|
Venter et al. (12) |
South Africa/45,026,000 |
Prospective hospital based study on liveborn neonates in Sovenga; 5 albinism cases |
0.66 per 1,000 live births (Incidence) |
29,720+ |
|
Kagore et al. (14) |
Zimbabwe/12,835,000 |
Postal survey of all secondary schools within the Harare regional office area; second mailing in 3 months; visited, if there was no response |
1/2,833 |
4,531 |
|
Lund (13) |
Zimbabwe/12,835,000 |
Nationwide survey to schools; age range of 6–23 yrs; 278 albinism cases |
1/4,728 |
2,715 |
|
Lund et al. (9) |
Zimbabwe/12,835,000 |
Follow up on the above study which identified a cluster of OCA2# in Tonga community; 11 albinism cases; 5 adults and 1 school girl were interviewed |
1/1,000 |
--- |
|
Luande et al. (17) |
Tanzania/36,977,000 |
Cross-sectional study. Questionnaire to 350 registered people with albinism in Tanzania Tumor Centre |
1/1,400 |
--- |
|
Okoro (8) |
Nigeria/124,009,000 |
Cross-sectional study. Questionnaires distributed to people with albinism who came to the hospital; expanded the study to educational, health, religious institutions and markets in East central state; 517 albinism cases |
1/15,000 |
8,267 |
|
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() Reference source * Source of population data as of 2003: http://www.who.int/en/ webcite ** Although it is a crude estimate, we used the prevalence of the specific population in the study and the total population in the country to extrapolate the absolute number of people with albinism within a country # OCA2 = Oculocutaneous albinism Type 2 (Tyrosine positive) + The absolute number in this case was estimated from a prevalence rate of 1 in 1,515 which was provided by the study's authors --- The population studied makes it difficult to generalize the prevalence to the entire country. Therefore, the absolute number within the country was not estimated |
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Hong et al. BMC Public Health 2006 6:212 doi:10.1186/1471-2458-6-212 |
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