Table 1

Estimated prevalence and number of people with albinism by country

Author

Country/Population*

Study Details

Prevalence

Estimated Number in country**


Kromberg et al.(11)

South Africa/45,026,000

Cross-sectional study. Subjects were ascertained through all 120 schools, 6 health clinics and 2 hospitals in Soweto and interviewed; 213 albinism cases found; 206 interviewed

1/3,900

11,545

Venter et al. (12)

South Africa/45,026,000

Prospective hospital based study on liveborn neonates in Sovenga; 5 albinism cases

0.66 per 1,000 live births (Incidence)

29,720+

Kagore et al. (14)

Zimbabwe/12,835,000

Postal survey of all secondary schools within the Harare regional office area; second mailing in 3 months; visited, if there was no response

1/2,833

4,531

Lund (13)

Zimbabwe/12,835,000

Nationwide survey to schools; age range of 6–23 yrs; 278 albinism cases

1/4,728

2,715

Lund et al. (9)

Zimbabwe/12,835,000

Follow up on the above study which identified a cluster of OCA2# in Tonga community; 11 albinism cases; 5 adults and 1 school girl were interviewed

1/1,000

---

Luande et al. (17)

Tanzania/36,977,000

Cross-sectional study. Questionnaire to 350 registered people with albinism in Tanzania Tumor Centre

1/1,400

---

Okoro (8)

Nigeria/124,009,000

Cross-sectional study. Questionnaires distributed to people with albinism who came to the hospital; expanded the study to educational, health, religious institutions and markets in East central state; 517 albinism cases

1/15,000

8,267


() Reference source

* Source of population data as of 2003: http://www.who.int/en/ webcite

** Although it is a crude estimate, we used the prevalence of the specific population in the study and the total population in the country to extrapolate the absolute number of people with albinism within a country

# OCA2 = Oculocutaneous albinism Type 2 (Tyrosine positive)

+ The absolute number in this case was estimated from a prevalence rate of 1 in 1,515 which was provided by the study's authors

--- The population studied makes it difficult to generalize the prevalence to the entire country. Therefore, the absolute number within the country was not estimated

Hong et al. BMC Public Health 2006 6:212   doi:10.1186/1471-2458-6-212

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