Table 2

Distribution of responses in the two surveys
Question N =1,041 N (%)
Beliefs about Genetic Research
1. Do you feel it is an important gift to society when a person takes part in medical research
  Yes 885 (83.02)
  Maybe 156 (14.64)
  No 25 (2.35)
2. How do you feel about genetic research
  Approve 875 (82.24)
  Unsure 180 (16.91)
  Disapprove 9 (0.86)
3. How would you feel about your genetic data being taken from you blood sample (your identity would not be known) and being used in medical research
  Approve 751 (70.79)
  Unsure 253 (23.84)
57 (5.37))
Personal privacy
4.Would you be willing to join the BioGeneBank *
  Yes 556 (52.72)
  Not sure 364 (34.36)
  No 137 (12.94)
5. Reasons for refusal among those who answered not sure/no:
  Having an extra tube of blood drawn 66 (14.22)
  Keeping information private and secure 332 (74.02)
  Interfering with nature by taking part in genetic res. 49 (11.6)
6. Would you be willing to provide extra info: about your daily habits
  Yes 586 ( 56.95)
  Most likely 275 (26.68)
  May be 122 (11.83)
  No 47 (4.54)
6a. about your family’s health
  Yes 682 (66.38)
  Most likely 211 ( 20.5)
  May be 89 (8.66)
  No 46 (4.46)
Informed consent process
7. Would you be comfortable if an “opt-out” approach was used in the BioGene Bank?
  Yes 461 (44.37)
  Most likely 197 (18.96)
  Maybe 166 (15.97)
  No 215 (20.71)
8a. Uncomfortable enrolling in a research without having the study explained to#
  Yes 376 (61.94)
  Probably 122 (20.11)
  May be 64 (10.52)
  No 46 (7.43)
8b. Concerned about being enrolled in a research without my knowledge#
  Yes 459 (74.77)
  Most likely 83 (13.48)
  May be 39 (6.44)
  No 33 (5.33)
8c. Worried that other kinds of research would be done that I don’t approve of#
  Yes 384 (62.18)
  Probably 89 (14.42)
  May be 76 (12.45)
  No 68 (10.96)

*this question was formulated slightly differently in the 2011 questionnaire; the statement “in the future” was added to the question.

#excluding those who answered ‘yes’.

Kerath et al.

Kerath et al. BMC Public Health 2013 13:114   doi:10.1186/1471-2458-13-114

Open Data