Table 2

Parent desired care plan content
Parent desired care plan content
• Medication list including drug, dose, route, administration instructions • Brief description of the non-medical characteristics of the child
• List of health care providers and contact information • The child’s development
• Pertinent family/social information
• Child’s medical history • How they communicate
• Emergency care guidelines • What makes them smile/laugh
• Date and author of the last revision of the care plan • Things they enjoy
• Photograph of the child
• Problem/diagnosis list • Health insurance information
• Alerts section • Glossary of medical terms
• Allergies • Summary of technology and/or equipment needs
• Pertinent diet/nutrition information
• Information about how quickly the child may deteriorate in a crisis • A summary of the parent’s role/expertise in their child’s care

Adams et al.

Adams et al. BMC Pediatrics 2013 13:10   doi:10.1186/1471-2431-13-10

Open Data