Table 2

Study information for articles retrieved using databases, iterative review of each paper's references, and purposefully

N


Total sample pool of 516 articles from 199 journals

Mean articles per journal

2.6

Number of journals with one article only

123

Number of journals with 10 or more articles

9

Randomly selected 30 articles from 24 journals

    N (%)

Retrieved from

PUBMED

14 (47%)

Reference sections of articles

9 (30%)

Other databases

7 (23%)

Study type

Qualitative (Interviews, Focus Groups, Ethnography)

13 (43%)

Literature reviews+

8 (26%)

Quantitative (Survey, Time diaries)

7 (20%)

Mixed methods

2 (7%)

Randomized Intervention Studies

0

Study period

Cross-sectional or one visit

21 (70%)

Longitudinal or multiple visits

1 (3%)

N/a (literature review)

8 (27)

Contained visual model

Yes

5 (17%)

No

25 (83%)

Disease type

Unspecified (CSCHN, Chronic Illness, Disability)

16 (53%)

Asthma

3 (10%)

Epilepsy

2 (7%)

Assisted by medical technology

2 (7%)

Type 1 Diabetes

2 (7%)

Other*

5 (17%)

Country of study site

United States

14 (47%)

Australia, Canada, U.K.

11 (37%)

Other**

5 (17%)

Gender of parent-participants

Mothers only

5 (17%)

Mothers and fathers eligible, greater than 55% mothers

7 (23%)

Mothers and fathers eligible, less than or equal to 55% mothers

3 (10%)

Fathers only

2 (7%)

Unspecified

5 (17%)

N/a (literature review)

8 (27%)

Addressed racial or ethnic minorities

Yes

1 (3%)

No

29 (97%)

Purposefully selected 15 additional articles from 10 journals

Longitudinal observational studies

5 (33%)

Intervention studies

5 (33%)

Addressed racial, ethnic, or very poor minorities

5 (33%)


+Included only 1 Literature Review with explicit search criteria. * Other disease includes 1 of each of the following: Anorexia, Cancer, Juvenile Rheumatoid Arthritis, Schizophrenia, and Infants At-Risk of SIDS.

** Other country includes 1 of each of the following: Germany, New Zealand, Sweden, Switzerland, and 1 study comparing U.S. and Icelandic populations

Hexem et al. BMC Pediatrics 2011 11:95   doi:10.1186/1471-2431-11-95

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