Table 1

Questionnaire dimensions and items
1. Means of problem identification (self discovery or screening)
2. First symptom identified by the patient
3. Patient initial interpretations of symptoms
 Perceived seriousness Initial worry
 Initial interpretation of cancer
4. Breast cancer symptoms present at arrival to the cancer hospital
 Lymphadenopathies Breast ulcer
 Breast pain Breast pruritus
 Arm pain Breast enlargement
 Paresthesias of breast and/or  ipsilateral arm Form changes of the breast
 Breast skin changes Nipple discharge
5. Most worrisome symptom for the patient
6. Patient's reason for seeking medical care (appearance of symptoms/persistence of symptoms/worsening of symptoms)
7. Patient's perception of delay
 Perception of patient delay Perception of provider delay
8. Patient's perceived reasons for patient delay
 Thought symptoms would  resolve alone Carelessness/neglect
 Didn't know where to seek  care Fear
 Lack of financial resources Embarrassment
 Difficulty to miss work Taking care of young children, older or ill relatives
9. Patient's perceived barriers to have caused provider delay
 Lack of information of health  services Lack of financial resources
 Fear Difficulty to miss work
 Perceived errors in diagnosis  of first doctors consulted Perceived long waiting times for medical appointments
 Had to take care of  youngsters, elders or ill relatives Had to borrow money to get medical care
 Financing source for payment  of health care
10. Health service utilization
 First health service used  (public, private, other) Breast ultrasound requested by first doctor consulted
 Number of different health  services consulted Biopsy requested by first consulted doctor
 Diagnostic impression of the  first doctor consulted Health service of referral to hospital
 Mammogram requested by  the first consulted doctor Biopsy done previous to arrival at hospital
11. Social network support for seeking medical attention
 Instrumental support Sex of person of most support
 Emotional support Size of network activated for breast problem
 Recommendations to consult  a doctor Sex of social network members
 Financial support Kinship with members of her social network
 Company to medical  consultations Sex of first person who she told
 Kinship with person of most  support Number of women older than 15 living at same household
12. Time between identification of the problem and the first time to talk to someone about it
13. Use of alternative medicine
14. Cancer-related knowledge
 Knowledge of a person with  cancer Has heard about mammograms
 Knowledge of mammograms'  utility Knowledge of recommended age for first screening mammogram
15. Cancer screening practices
 Last Pap smear Screening Breast Clinical Exam before current breast problem
 Mammograms before current  breast problem Breast Self Examination practice
16. Dates
 Symptom discovery First medical consultation

Unger-Saldaña et al.

Unger-Saldaña et al. BMC Cancer 2012 12:626   doi:10.1186/1471-2407-12-626

Open Data