Table 1 |
||||
| Outcomes, measures and to whom it is administered | ||||
| Neurocognitive assessment | Measurement | T0 | T1 | T2 |
| Attention | Attention Network task (ANT) [28] | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| Processing speed | Baseline Speed ANT [28] | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| Memory | Visual Sequencing task | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| Digit Span (age appropriate Wechsler scale) [29,30] | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) | |
| Intellectual functioning | Abbreviated WISC-III* [29] | Patient/sibling (8–16) | - | Patient (8–16) |
| Abbreviated WAIS-III* [30] | Patient/sibling (17–18) | - | Patient (17–18) | |
| Inhibition | Stop Signal task [31] | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| Visuomotor integration | Tracking and Pursuit task | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| Questionnaires | ||||
| Social/emotional functioning | SDQ child version [32] | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| SDQ parent version [32] | Caregiver (8–18) | Caregiver (8–18) | Caregiver (8–18) | |
| SDQ teacher version [32] | Teacher (8–18) | Teacher (8–18) | Teacher (8–18) | |
| Self esteem | Dutch version SPPC [33] | Patient/sibling (8–11) | Patient (8–11) | Patient (8–11) |
| Dutch version SPPA [34] | Patient/sibling (12–18) | Patient (12–18) | Patient (12–18) | |
| Health related quality of life | Kidscreen 27 [35] | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| Fatigue | CIS [36] | Patient/sibling (8–18) | Patient (8–18) | Patient (8–18) |
| Sleep disorder | SDSC [37] | Caregiver (8–18) | Caregiver (8–18) | Caregiver (8–18) |
| Attention | SWAN [38] | Caregiver (8–18) | Caregiver (8–18) | Caregiver (8–18) |
| Executive functioning | BRIEF parent version [39] | Caregiver (8–18) | Caregiver (8–18) | Caregiver (8–18) |
| BRIEF teacher version [39] | Teacher (8–18) | Teacher (8–18) | Teacher (8–18) | |
Note: Intellectual functioning is assessed at T0 and T2 but not at T1. Siblings are assessed at T0 only.
*The following subtasks were administered: Arythmic, Similarities, Block Design, and Picture Completion.
SDQ = Strengths and Difficulties Questionnaires; SPPC/SPPA = Self Perception Profile for Children/Adolescents; CIS = Checklist Individual Strength; Sleep Disturbance Scale for Children; SWAN = Strengths and Weaknesses of ADHD-symptoms and Normal-behavior; BRIEF = Behavior Rating Inventory of Executive Functioning; WISC-III = Wechsler Intelligence Scale for Children – Third version; WAIS-III = Wechsler Adult Intelligence Scale – Third version.
de Ruiter et al. BMC Cancer 2012 12:581 doi:10.1186/1471-2407-12-581