Table 1

The original SCNS-SF34 items and wording changes included in the SCNAT-IP
Original item Final items in SCNAT-IP
1 Pain Physical pain (e.g., hurt)
2 Lack of energy/tiredness Feeling tired (e.g., sleeping ok)
3 Feeling unwell a lot of the time Not feeling well (e.g., feeling rotten, crook or sick) a lot of the time
4 Work around the home Work around the home (e.g., washing, cooking, raking the yard, sweeping the floor)
5 Not being able to do the things you used to do Doing the things you used to do (e.g., fishing, walking, seeing family)
6 Anxiety Anxiety (e.g., worrying, fear, concern)
7 Feeling down or depressed Feeling down or sad
8 Feeling of sadness
9 Fears about the cancer spreading Worrying about your illness spreading or getting worse
10 Worry that the results of treatment are beyond your control Worry about the results of the treatment
11 Uncertainty about the future
12 Learning to feel in control of your situation
13 Keeping a positive outlook Keeping you strong in your spirit (e.g., staying positive)
14 Feelings about death and dying
15 Changes in sexual feelings Changes in sexual feelings (optional question)
16 Changes in your sexual relationships
17 Concerns about the worries of those close to you Concerns about the worries of those close to you (e.g., family and friends)
18 More choice about which cancer specialists you see
19 More choice about which hospital you attend Having choice about which hospital you attend
20 Reassurance by medical staff that the way you feel is normal Support by staff that the way you feel is natural (e.g., common, typical)
21 Hospital staff attending promptly to your
    physical
needs
Having hospital staff attending quickly to your physical needs (e.g., if you needed assistance getting out of bed)
22 Hospital staff acknowledging, and showing sensitivity to, your feelings and emotional needs Having hospital staff show sensitivity to and respecting your feelings and emotional needs
23 Being given written information about the important aspects of your care Being shown or given information (e.g., written, diagrams) about how to manage your treatment, illness and side-effects
    in hospital
24 Being given information (written, diagrams, drawings) about aspects of managing your illness and side-effects at home Being shown or given information (e.g., written, diagrams) about how to manage your illness and side-effects
    at home
25 Being given explanations of those tests for which you would like explanations Explaining what tests are for
26 Being adequately informed about the benefits and side –effects of treatments before you chose to have them Understanding the good and bad effects of treatments before you chose to have them (e.g., having someone explain these to you)
27 Being informed about your test results as soon as feasible Being told about your test results as soon as possible
28 Being informed about cancer which is under control or diminishing (that is, remission) Being told about whether your cancer is in remission (e.g., fading or finishing)
29 Being informed about things you can do to help yourself get well Being told about things you can do to help yourself get well (e.g., safe exercises, what you eat)
30 Having access to professional counselling (e.g. psychologist, social worker, counsellor, nurse specialist) if you, family or friends need it Having access to professional counselling (e.g., psychologist, social worker, Aboriginal Liaison Officer) if you or family and friends need it
31 To be given information about sexual relationships To be given information about sexual relationships (optional question)
32 Being treated like a person not just another case Being treated like a person not just another case or a number
33 Being treated in a hospital or clinic that is as physically pleasant as possible
34 Having one member of hospital staff with whom you can talk to about all aspects of your condition, treatment and follow-up Having one hospital person you can talk to about your condition, treatment and follow-up

Garvey et al.

Garvey et al. BMC Cancer 2012 12:300   doi:10.1186/1471-2407-12-300

Open Data