Table 1

Interview guide


Main question

"How has myotonic dystrophy influenced your daily life and how do you manage?"


Topics

Current daily activities, roles and relations and their meaning

Activities, roles and relations and their meaning in the past

Changes in activities roles and relations

Management strategies to deal with changes


Topic added following the pilot interview

Understanding from others


Cup et al. BMC Neurology 2011 11:86   doi:10.1186/1471-2377-11-86

Open Data