Table 1

Data collected at study baseline and follow up
PATIENT
Measure Baseline 1 3 6
Month Month Month
Current Treatment Information
 Date and Place of Initiation of Dialysis   X
 Presence of AV* Fistula or AV Graft   X
 Presence of Peritoneal Catheter   X   X   X   X
Exposure to Information about Kidney Disease Treatment
 In Center Hemodialysis Information   X   X   X   X
 Home Hemodialysis Information   X   X   X   X
 Peritoneal Dialysis Information   X   X   X   X
 Kidney Transplant Information   X   X   X   X
 Live Donor Kidney Transplant Information   X   X   X   X
Discussions with Health Care Providers about Kidney Disease Treatment
 Occurrence of Physician Discussions-Nephrologists   X
 Satisfaction with Patient-Physician Discussions   X
 Physician Recommendations Regarding LRT*   X
Belief & Knowledge about Treatment for Kidney Failure, Interest in LRT
 Beliefs About Treatment for Kidney Failure   X   X   X   X
 Knowledge of LRT   X   X   X   X
 Interest in LRT   X   X   X   X
 Consideration of LRT (stage placement)   X   X   X   X
Elements of Shared Decision Making
 Stage in Decision Making [43]   X   X   X   X
 Decision Self-Efficacy [43]   X   X   X   X
 Decisional Conflict Scale [44]   X   X   X   X
 Interest in Switching Renal Replacement Therapy
Pursuit of LRT, Barriers to Completing Behavior Stages
 Quality of Family Discussion   X   X   X   X
 Information on Donor   X   X   X   X
 Barriers to Patient-Family Discussion   X   X   X   X
 Barriers to Patient-Physician Discussion   X   X   X   X
 Barriers to Starting Evaluation   X   X   X   X
 Barriers to Completing Evaluation   X   X   X   X
Mediators and Correlates of Pursuit of LRT
 Trust in Medical Care [53,54]   X
 In-Center Dialysis Care - Nephrologist Communication, Receipt of Information   X   X   X   X
 Family Functioning [46]   X
 Depressed Mood PRIME-MD/PHQ*[48]   X   X   X
 Social Function - Emotional Support, Instrumental Support, Informational Support, Social Isolation [47]   X
 Personal Financial Well-being Scale [49]   X
 Charlson Comorbidity Index [55]   X
 Sociodemographic Information   X
Assessment of Book and Video
 Assessment of Book and Video   X   X   X
Health Literacy and Numeracy
 Rapid Estimate of Adult Literacy in Medicine (REALM) [50]   X
 Subjective Numeracy and Risk Numeracy [51,52]   X

*Abbreviations are as follows: living related kidney transplantation (LRT); arteriovenous (AV); primary care evaluation of mental disorders/patient health questionnaire (PRIME-MD/PHQ).

Ephraim et al.

Ephraim et al. BMC Nephrology 2012 13:135   doi:10.1186/1471-2369-13-135

Open Data