Table 6

Partially met and unmet needs with respect to environmental factors

Environmental Factors

No. of iterations reported by

Themes

Caregivers

Health Professionals

Healthcare Managers

Patients


Political economic factors

Medical care (socio-health system)

33

30

24

32

▪ Information on existing services

▪ Access to services (delays and disparities)

▪ Follow-up and transfer of files between establishments

▪ Respite services for caregivers: lodging, sitting

▪ Long-term follow-up by CLSC1

▪ Information on medication

▪ Follow-up on taking medication

Rehabilitation (socio-health system)

64

63

17

39

Rehabilitation:

▪ Multi-disciplinary care for patients: speech therapist, neuropsychologist, psychologist, nutritionist

▪ Evaluation of care dependent on budget and services offered rather than on patient's needs

▪ Personalized approach: length of stay, competency of staff with respect to aphasia, knowledge of patient's file, feeding, alternative therapy, intensity of interventions, services limited in some disciplines (speech therapy), attitude of staff with respect to overprotection, staff rotation versus counselling

Adjustment:

▪ Access to services (delays): assistive technology, adaptation of home and vehicle

▪ Disparities between services offered in different CLSC territories

▪ Obtaining AT and support for care process: AT for the bathroom, clamp, electric bed, portable hoists, AT feeding, grab bars, emergency call button

▪ Home adaptation, support for care process: door frames, bathroom, access ramps, lift on rails, stairs, exiting the home

▪ Vehicle adaptation

▪ Follow-up on attribution of AT and home adaptation

▪ Support and means to find resources in the community (social worker, doctor)

▪ Psychosocial support offered to the family at start and end of stay

▪ Meeting with family at start and end of stay

Social assistance (socio-health system)

15

12

10

4

▪ Information on existing services

▪ Discussion group and support for caregivers

▪ Discussion group for patients

▪ Sitting or respite services

▪ Day centre

▪ Temporary lodgings

▪ Support service for meeting with volunteers

▪ Voluntary support and partnership: life project

▪ Who does what: meetings, voluntary work, services, care...

Other types of instruction (education system)

14

23

10

19

▪ Direct instruction to caregivers/family by health professionals (bathroom hygiene with AT, practising walking, preventing falls, medication, aphasia, exercises, state of health, nutrition, feeding and nourishment, basic care such as using the toilet)

▪ Integration of caregivers/family in vivo during care interventions (gym, therapy, services plan, day hospital)

▪ Prevention of falls (information meeting, video)

Momentum for communicating information to patient and caregiver

▪ Education on consequences and impacts at home (preparing for return home)

▪ Education on mourning process

▪ Equip caregivers with tools to find services for the patients, answers to their questions and support resources

Public infrastructures

4

2

3

10

▪ Adapted/accessible transportation or paratransit

Community organizations

1

9

2

2

▪ Information on existing services, directories

▪ Community services for stroke survivors

▪ Transport by community organizations

▪ Promotion and education by certain community organizations relating to consequences of stroke (values, attitudes)

Sociocultural factors

Social Network

6

6

1

7

▪ Family: availability and relationships

▪ Friends: social climate

Physical factors

Architecture; National and regional development

2

0

0

7

▪ Circulation space in public places (walking frame, wheelchair): sidewalks, ramps, stairs

▪ Parking spaces

▪ Rest areas: public benches

▪ Use of doors

Technology

0

2

2

6

▪ Access to mobility aids for shopping (wheelchair, walking frame, tripod cane)

▪ Access to special needs equipment (pool, treadmill, rails...)


1 : center of local community services

Vincent et al. BMC Geriatrics 2007 7:20   doi:10.1186/1471-2318-7-20

Open Data