Table 2 |
|
|
Additional themes identified in interviews |
|
|
Themes |
Examples |
|
|
|
|
Motivation for being a carer |
• Marriage vows • Memories of past life together |
|
Changing roles and relationships |
• Demise of reciprocal loving relationship • Loss of independence |
|
Coping mechanisms |
• Living environment • Slow course of HD |
|
Employment & financial changes |
• Loss of employment • Lower income |
|
Experiences of social/ health care services |
• HD management • Respite care |
|
Scottish Huntington's Association |
• Practical advise • Emotional support |
|
Living with HD |
• Impact of the disease • Personal development of carers |
|
|
|
|
Lowit and van Teijlingen BMC Family Practice 2005 6:38 doi:10.1186/1471-2296-6-38 |
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