Open Access Highly Accessed Research article

Patient perspective on the management of atrial fibrillation in five European countries

Ameet Bakhai12*, Anna Sandberg3, Thomas Mittendorf4, Wolfgang Greiner5, André MS Oberdiek3, Patrizia Berto67, Edith Franczok8, Trudie Lobban9 and Jose L Zamorano10

Author Affiliations

1 Barnet and Chase Farm Hospitals NHS Trust, The Ridgeway, Enfield, EN2 8JL Middlesex, UK

2 AMORE Health Ltd, 11 Pinewood Avenue, HA5 4BN Pinner, UK

3 Daiichi Sankyo Europe GmbH, Zielstattstrasse 48, 81379 Munich, Germany

4 Herescon GmbH, Health Economic Research and Consulting, Herescon GmbH, Königsworther Str. 2 D, 30167 Hannover, Germany

5 Health Economics and Health Care Management, University of Bielefeld, Bielefeld, Universitätsstraße 25, 33615 Bielefeld, Germany

6 University of Padova, Padova, Via 8 Febbraio, 2-35122 Padova, Italy

7 Analytica-Laser, Vicolo Stella 6, 37121 Verona, Italy

8 Harris Interactive AG, Beim Strohhause 31, 20097 Hamburg, Germany

9 Atrial Fibrillation Association, Chew Hill, Chew Magna, Avon BS40 8WB Bristol, UK

10 Hospital Ramón y Cajal, University Alcala de Henares, Carretera de Colmenar Km 9.100, 28034 Madrid, Spain

For all author emails, please log on.

BMC Cardiovascular Disorders 2013, 13:108  doi:10.1186/1471-2261-13-108

Published: 1 December 2013

Abstract

Background

Long-term management of chronic conditions, such as atrial fibrillation (AF), require frequent interactions with the healthcare systems. The multinational EUropean Patient Survey in Atrial Fibrillation (EUPS-AF) was conducted to investigate patient satisfaction with AF management in different of five European healthcare systems at a time of changing treatment paradigms for stroke prophylaxis, prior to the advent of newer oral anticoagulants.

Methods

Adults (>18 years) were recruited at random from the total populations of France, Germany, Italy, Spain and the UK using a randomized telephone dialling system. At least 300 respondents per country reporting to have a diagnosis of AF or receiving oral anticoagulation therapy for suspected AF or to have a heart rhythm disturbance completed a structured telephone interview.

Results

Most respondents were satisfied with their treatment for AF over the previous 12 months, with 85.5% (n = 1289) rating their care as good or better. Suboptimal clinical practices, however, were identified in several key areas. Coordination of primary and secondary care and a lack of patient engagement and support were particular issues, especially for those patients likely to have extensive contact with their healthcare system.

Conclusions

In the context of Europe-wide guidelines for management of AF, most patients with AF were satisfied with their care, but for a greater proportion of patients, some aspects are unsatisfactory. Patient-centred surveys, such as the EUPS-AF, are crucial for understanding the factors that contribute to patient satisfaction and compliance with long-term treatment for chronic conditions.

Keywords:
Atrial fibrillation; Arrhythmia; Patient satisfaction; Stroke; Anticoagulants