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Open Access Research article

Intensive care staff, the donation request and relatives’ satisfaction with the decision: a focus group study

Jack de Groot12*, Myrra Vernooij-Dassen13, Anneke de Vries2, Cornelia Hoedemaekers4, Andries Hoitsma5, Wim Smeets126 and Evert van Leeuwen1

Author Affiliations

1 Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the Netherlands

2 Department of Spiritual and Pastoral Care, Radboud University Medical Center, Nijmegen, the Netherlands

3 Kalorama Foundation, Nijmegen, the Netherlands

4 Department of Intensive Care Medicine, Radboud University Medical Center, Nijmegen, the Netherlands

5 Department of Nephrology, Radboud University Medical Center, Nijmegen, the Netherlands

6 Department of Religious Studies and Theology, Faculty of Humanities, Utrecht University, Utrecht, the Netherlands

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BMC Anesthesiology 2014, 14:52  doi:10.1186/1471-2253-14-52

Published: 11 July 2014

Abstract

Background

Effectiveness of the donation request is generally measured by consent rates, rather than by relatives’ satisfaction with their decision. Our aim was to elicit Dutch ICU staffs’ views and experiences with the donation request, to investigate their awareness of (dis)satisfaction with donation decisions by relatives, specifically in the case of refusal, and to collect advice that may leave more relatives satisfied with their decision.

Methods

Five focus groups with a total of 32 participants (IC physicians, IC nurses and transplant coordinators) from five university hospitals in the Netherlands. Transcripts were examined using standard qualitative methods.

Results

Four themes (donation request perceived by ICU staff from the perspective of relatives; donation request perceived by ICU staff from their own perspective; aftercare; donation in society) divided into 14 categories were identified.

According to ICU staff, relatives mentioned their own values more frequently than values of the potential donor as important for the decision. ICU staff observed this imbalance, but reacted empathically to the relatives’ point of view. ICU staff rarely suggested reconsideration of refusal and did not ask relatives for arguments.

ICU staff did not always feel comfortable with a request in the delicate context of brain death. Sometimes the interests of patient, relatives and those on the waiting list were irreconcilable.

ICU staff were mostly unaware of relatives’ regret following their decisions. Aftercare did not provide this type of information.

Donation request by IC physicians was influenced by the way organ donation has been regulated in society (law, donor register, education, media).

Conclusions

Our findings lead to the hypothesis that giving relatives more time and inviting them to reconsider their initial refusal will lead to a more stable decision and possibly more consent.

Keywords:
Organ donation; Qualitative research; Health care professionals; Donation request; Regret