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Patient Involvement and Shared Decision Making

Guest Editors:
Gaetano Gallo: La Sapienza University of Rome, Italy
Rosanne Janssens: Katholieke Universiteit Leuven, Belgium



BMC Medical Informatics and Decision Making welcomed articles that offer insights into patient preferences and participation, shared decision-making tools and methods, and patient-reported outcomes measures. Articles comprise methodological learnings and proposed ways for systematically integrating preference studies in medical research and practice, complementing existing methods and fostering targeted multi-stakeholder discussions and internationally accepted recommendations and guidelines.

Meet the Guest Editors

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Gaetano Gallo: La Sapienza University of Rome, Italy
Gaetano Gallo is an Assistant Professor in the Department of Surgical Sciences at “La Sapienza” University of Roma, Roma, Italy.  He has a clinical and academic interest in Proctology (Haemorrhoidal Disease, Perianal and Rectovaginal Fistulas, Rectal Prolapse), Functional and Pelvic Floor Disorders, IBD, and Microbiome and Colorectal Cancer. He has written more than 200 articles, including several national and international guidelines on colorectal diseases (Haemorrhoidal Disease, Rectal Prolapse, Appendicitis).  He is an Executive Member of the Italian Society of Colorectal Surgery (SICCR) and is currently a member of the European Society of Coloproctology (ESCP) Guidelines and Cohort Studies Committees. He is a member of several Editorial Boards such as Surgery, Colorectal Disease, Techniques in Coloproctology, and several Journals in the BMC Series.


Rosanne Janssens: Katholieke Universiteit Leuven, Belgium

Rosanne Janssens is a post-doctoral researcher at the KU Leuven in Belgium, in the Regulatory Sciences & Pharmaco-Economics research unit. Her research interests and activities are focused on investigating policy and multi-stakeholder challenges and solutions towards optimizing drug development, regulatory, and Health Technology Assessment (HTA) decision-making frameworks spanning across the medicinal product life cycle.  During her PhD, she derived methodological and policy-related recommendations regarding the design, conduct, and use of patient preference studies for informing drug development, regulatory, and HTA decisions.  Rosanne holds a Master's degree in Biomedical Sciences (KU Leuven, 2016, summa cum laude) with a specialization in Management and Communication. She (co-)wrote 15 peer-reviewed publications in international journals and gave 12 presentations at international conferences (abstracts, posters, and presentations). Rosanne obtained the following certificates from university-led courses on methodological and policy-related topics in drug development and evaluation: Strategic Management in the Pharma Sector (B-KUL-K09I0A, 80%); Good Clinical Practice Certificate; Translational Medicine (5 ECTS, I3h-ULB), 95%.

 



About the collection

Stakeholders involved in drug development, evaluation, and clinical use call for evidence-based insights into ways for assessing and including patients’ preferences in a meaningful and systematic manner. The same applies to other medical interventions, such as medical devices, tools and techniques, the most various procedures from surgery and drug treatment to patient psychological support. A wide-spread implementation of robustly designed patient involvement methods in all steps of clinical processes will amplify patients’ unique voices.

 This collection welcomed articles that offer insights into patient preferences and participation, shared decision-making tools and methods, and patient-reported outcomes measures.

 Articles comprise methodological learnings and proposed ways for systematically integrating preference studies in medical research and practice, complementing existing methods and fostering targeted multi-stakeholder discussions and internationally accepted recommendations and guidelines.

  1. Effective communication and information delivery enhance doctor–patient relationships, improves adherence to treatment, reduces work burden, and supports decision-making. The study developed a head and neck ca...

    Authors: Yoo-Ri Koo, Eun-Jeong Kim and Inn-Chul Nam
    Citation: BMC Medical Informatics and Decision Making 2024 24:81
  2. Wearable devices have the advantage of always being with individuals, enabling easy detection of their movements. Smart clothing can provide feedback to family caregivers of older adults with disabilities who ...

    Authors: Chung-Chih Lin, Ching-Tzu Yang, Pei-Ling Su, Jung-Ling Hsu, Yea-Ing L. Shyu and Wen-Chuin Hsu
    Citation: BMC Medical Informatics and Decision Making 2024 24:71
  3. In the intensive care unit (ICU) relatives play a crucial role as surrogate decision-makers, since most patients cannot communicate due to their illness and treatment. Their level of involvement in decision-ma...

    Authors: Sophie C. Renckens, H. Roeline Pasman, Zina Jorna, Hanna T. Klop, Chantal du Perron, Lia van Zuylen, Monique A.H. Steegers, Birkitt L. ten Tusscher, Margo M.C. van Mol, Lilian C.M. Vloet and Bregje D. Onwuteaka-Philipsen
    Citation: BMC Medical Informatics and Decision Making 2024 24:46
  4. Incarceration occurred in approximately 5% to 15% of inguinal hernia patients, with around 15% of incarcerated cases progressing to intestinal necrosis, necessitating bowel resection surgery. Patients with int...

    Authors: Jiajie Zhou and Xiaoming Yuan
    Citation: BMC Medical Informatics and Decision Making 2024 24:39
  5. Nutritional risk situations related to decreased food intake in the hospital environment hinder nutritional care and increase malnutrition in hospitalized patients and are often associated with increased morbi...

    Authors: Alan Renier Jamal Occhioni Molter, Naise Oliveira da Rocha Carvalho, Paloma Ribeiro Torres, Marlete Pereira da Silva, Patrícia Dias de Brito, Pedro Emmanuel Alvarenga Americano do Brasil, Claudio Fico Fonseca and Adriana Costa Bacelo
    Citation: BMC Medical Informatics and Decision Making 2024 24:28
  6. The linkage of primary care, hospital and other health registry data is a global goal, and a consent-based approach is often used. Understanding the attitudes of why participants take part is important, yet li...

    Authors: Kim Greaves, Amanda King, Zoltan Bourne, Jennifer Welsh, Mark Morgan, M. Ximena Tolosa, Carissa Bonner, Tony Stanton, Michael Fryer and Rosemary Korda
    Citation: BMC Medical Informatics and Decision Making 2024 24:22
  7. India has the most significant number of children with thalassemia major worldwide, and about 10,000-15,000 children with the disease are born yearly. Scaling up e-health initiatives in rural areas using a cos...

    Authors: Atul Kumar Jain, Prashant Sharma, Sarkaft Saleh, Tuphan Kanti Dolai, Subhas Chandra Saha, Rashmi Bagga, Alka Rani Khadwal, Amita Trehan, Izabela Nielsen, Anilava Kaviraj, Reena Das and Subrata Saha
    Citation: BMC Medical Informatics and Decision Making 2024 24:5
  8. The implementation of precision medicine is likely to have a huge impact on clinical cancer care, while the doctor-patient relationship is a crucial aspect of cancer care that needs to be preserved. This syste...

    Authors: Å. Grauman, M. Ancillotti, J. Veldwijk and D. Mascalzoni
    Citation: BMC Medical Informatics and Decision Making 2023 23:286
  9. This study aimed to assess health care needs, electronic health literacy, mobile phone usage, and intention to use it for self-management purposes by informal caregivers of children with burn injuries.

    Authors: Fatemeh Rangraz Jeddi, Ehsan Nabovati, Mohammadreza Mobayen, Hossein Akbari, Alireza Feizkhah, Joseph Osuji and Parissa Bagheri Toolaroud
    Citation: BMC Medical Informatics and Decision Making 2023 23:236
  10. Thermoregulation is important for all age groups, and in neonates, it is considered a crucial event to adapt to extrauterine life. Therefore, using systems that provide frequent reminders in different ways in ...

    Authors: Raziyeh Beykmirza, Elahe Rastkar Mehrabani, Maryam Hashemi, Maryam Mahdizade Shahri, Reza Negarandeh and Maryam Varzeshnejad
    Citation: BMC Medical Informatics and Decision Making 2023 23:227
  11. Given the increasing number of dementia patients worldwide, a new method was developed for machine learning models to identify the ‘latent needs’ of patients and caregivers to facilitate patient/public involve...

    Authors: Nanae Tanemura, Tsuyoshi Sasaki, Ryotaro Miyamoto, Jin Watanabe, Michihiro Araki, Junko Sato and Tsuyoshi Chiba
    Citation: BMC Medical Informatics and Decision Making 2023 23:203
  12. Shared decision-making (SDM) is a collaborative process whereby patients and clinicians jointly deliberate on the best treatment option that takes into account patients’ preferences and values. In breast cance...

    Authors: Natalia Oprea, Vittoria Ardito and Oriana Ciani
    Citation: BMC Medical Informatics and Decision Making 2023 23:164
  13. Treatment with oral anticoagulants (OACs) could prevent stroke in atrial fibrillation (AF), but side effects developed due to OACs may cause patients anxiety during decision making. This study aimed to investi...

    Authors: Hsiao-Hui Chiu, Shih-Lin Chang, Hao-Min Cheng, Tze-Fan Chao, Yenn-Jiang Lin, Li-Wei Lo, Yu-Feng Hu, Fa-Po Chung, Jo-Nan Liao, Ta-Chuan Tuan, Chin-Yu Lin, Ting-Yung Chang, Ling Kuo, Chih-Min Liu, Yung-Nan Tsai, Yu-Ting Huang…
    Citation: BMC Medical Informatics and Decision Making 2023 23:163
  14. Current healthcare trends emphasize the use of shared decision-making (SDM) for renal replacement treatment (RRT) in patients with chronic kidney disease (CKD). This is crucial to understand the relationship b...

    Authors: Shih-Ming Hsiao, Mei-Chuan Kuo, Pei-Ni Hsiao, Sin-Hua Moi, Yi-Wen Chiu, Shu-Li Wang, Tzu-Hui Chen, Lan-Fang Kung, Shang-Jyh Hwang and Chia-Lun Lee
    Citation: BMC Medical Informatics and Decision Making 2023 23:159
  15. Evidence-based medicine education has not focused on how clinicians involve patients in decision-making. Although shared decision-making (SDM) has been investigated to address this issue, there are insufficien...

    Authors: Tatsuya Ogawa, Shuhei Fujimoto, Kyohei Omon, Tomoya Ishigaki and Shu Morioka
    Citation: BMC Medical Informatics and Decision Making 2023 23:135
  16. COVID-19 is an ongoing global health crisis with prevention and treatment recommendations rapidly changing. Rapid response telephone triage and advice services are critical in providing timely care during pand...

    Authors: Jyu-Lin Chen, Chen-Xi Lin, Mijung Park, Jerry John Nutor, Rosalind de Lisser, Thomas J. Hoffmann and Hannah J. Kim
    Citation: BMC Medical Informatics and Decision Making 2023 23:47
  17. The shared decision-making model has been proposed as the ideal treatment decision-making process in medical encounters. However, the decision to participate in clinical trials rarely involves shared decision-...

    Authors: Miho Fujita, Yuki Yonekura and Kazuhiro Nakayama
    Citation: BMC Medical Informatics and Decision Making 2023 23:39
  18. Clinical decision aids may support shared decision-making for screening mammography. To inform shared decision-making between patients and their providers, this study examines how patterns of using an EHR-inte...

    Authors: Yan Liu, Rachel Kornfield, Ellie Fan Yang, Elizabeth Burnside, Jon Keevil and Dhavan V. Shah
    Citation: BMC Medical Informatics and Decision Making 2022 22:323

Submission Guidelines

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This Collection welcomes submission of Research Articles. Before submitting your manuscript, please ensure you have read our submission guidelines. Articles for this Collection should be submitted via our submission system, Snapp. During the submission process you will be asked whether you are submitting to a Collection, please select "Patient Involvement and Shared Decision Making" from the dropdown menu.

Articles will undergo the journal’s standard peer-review process and are subject to all of the journal’s standard policies. Articles will be added to the Collection as they are published.

The Guest Editors have no competing interests with the submissions which they handle through the peer review process. The peer review of any submissions for which the Guest Editors have competing interests is handled by another Editorial Board Member who has no competing interests.