BMC Medical Informatics and Decision Making is calling for submissions to our Collection on "Data sources and registries in healthcare". Health data source initiatives and disease registries are of crucial importance for disease management and have been increasingly used in clinical research. However, such initiatives are often overlooked in the published literature, meaning that they are used in clinical studies but are not properly reported and described.
This collection welcomes articles describing the development or the novel application of health-related data sources and data banks, federated database systems and other data sharing initiatives, clinical registries including disease and patient registries, electronic health record systems, claims data and health administrative data. The description of data infrastructure, its application to specific settings, or novel developments to solve challenges such as medical data integration, ethical case production and generation, or synthetic data production will be considered. The focus will not be on the regulatory aspect, but the collection will consider studies presenting technical solutions to address ethical data sharing and comply with the FAIR data principles.
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