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International data sharing in medicine

The production of vast quantities of high-throughput data is changing the way biomedical research is carried out. Evidence that sharing data aids research and speeds up translation to the clinic has to be balanced with the need to protect data from individuals who have provided samples. The International Data Sharing Conference 2010, hosted by HeLEX, the Centre for Health, Law and Emerging Technologies at the University of Oxford, explored the challenges involved in medical data storage and sharing.

Dr Paula Boddington, Dr Jane Kaye

  1. Debate

    Bridging consent: from toll bridges to lift bridges?

    The ability to share human biological samples, associated data and results across disease-specific and population-based human research biobanks is becoming increasingly important for research into disease deve...

    Isabelle Budin-Ljøsne, Anne Marie Tassé, Bartha Maria Knoppers and Jennifer R Harris

    BMC Medical Genomics 2011 4:69

    Published on: 4 October 2011

  2. Correspondence

    Developing and implementing an institute-wide data sharing policy

    The Wellcome Trust Sanger Institute has a strong reputation for prepublication data sharing as a result of its policy of rapid release of genome sequence data and particularly through its contribution to the H...

    Stephanie OM Dyke and Tim JP Hubbard

    Genome Medicine 2011 3:60

    Published on: 28 September 2011

  3. Correspondence

    Towards a data sharing Code of Conduct for international genomic research

    Data sharing is increasingly regarded as an ethical and scientific imperative that advances knowledge and thereby respects the contributions of the participants. Because of this and the ever-increasing amount ...

    Bartha Maria Knoppers, Jennifer R Harris, Anne Marie Tassé, Isabelle Budin-Ljøsne, Jane Kaye, Mylène Deschênes and Ma'n H Zawati

    Genome Medicine 2011 3:46

    Published on: 14 July 2011