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International data sharing in medicine

The production of vast quantities of high-throughput data is changing the way biomedical research is carried out. Evidence that sharing data aids research and speeds up translation to the clinic has to be balanced with the need to protect data from individuals who have provided samples. The International Data Sharing Conference 2010, hosted by HeLEX, the Centre for Health, Law and Emerging Technologies at the University of Oxford, explored the challenges involved in medical data storage and sharing.

Dr Paula Boddington, Dr Jane Kaye

  1. Content type: Debate

    The ability to share human biological samples, associated data and results across disease-specific and population-based human research biobanks is becoming increasingly important for research into disease deve...

    Authors: Isabelle Budin-Ljøsne, Anne Marie Tassé, Bartha Maria Knoppers and Jennifer R Harris

    Citation: BMC Medical Genomics 2011 4:69

    Published on:

  2. Content type: Correspondence

    Data sharing is increasingly regarded as an ethical and scientific imperative that advances knowledge and thereby respects the contributions of the participants. Because of this and the ever-increasing amount ...

    Authors: Bartha Maria Knoppers, Jennifer R Harris, Anne Marie Tassé, Isabelle Budin-Ljøsne, Jane Kaye, Mylène Deschênes and Ma'n H Zawati

    Citation: Genome Medicine 2011 3:46

    Published on:

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