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Severe and Enduring Eating Disorders (SEED)

Edited by:
Paul Robinson, MD, University College London, United Kingdom
Stephen Wonderlich, PhD, University of North Dakota School of Medicine and Health Sciences, United States of America
Geneviève Pepin, PhD, Deakin University, Australia
Phillipa Hay, MD, DPhil, Western Sydney University, Australia
Stephen Touyz, PhD, FAED, FAPS, University of Sydney, Australia

Submission Status: Closed

This collection is no longer accepting submissions

Journal of Eating Disorders is calling for submissions to our Collection on Severe and Enduring Eating Disorders (SEED).

Image credit: © Ute Grabowsky / photothek / picture alliance

  1. Models of treatment for adults with severe and enduring eating disorders focus on harm reduction and improving quality of life. However, there is a notable gap in the pediatric literature in this area. The cur...

    Authors: Jennifer S. Coelho, Tanya Pardiwala, Sheila K. Marshall, Pei-Yoong Lam, Seena Grewal, Alice Virani, Alexandra Olmos Pérez and Josie Geller
    Citation: Journal of Eating Disorders 2024 12:83
  2. Anorexia nervosa is a life-threatening psychiatric illness with a high mortality rate and limited treatment options. This illness is frequently comorbid with major depressive disorder, leading to additional ob...

    Authors: Amanda Timek, Catherine Daniels-Brady and Stephen Ferrando
    Citation: Journal of Eating Disorders 2024 12:79
  3. The label severe and enduring anorexia nervosa (SE-AN) is widely used in the literature on longstanding anorexia nervosa (AN). However, the process of constructing the criteria and the use of the label SE-AN h...

    Authors: Marthe M. Voswinkel, Simone M. Hanegraaff, Suzanne H.W. Mares, Elke Wezenberg, Johannes J.M. van Delden and Annemarie A. van Elburg
    Citation: Journal of Eating Disorders 2024 12:77
  4. Eating disorders (EDs) are complex, multifaceted conditions that significantly impact quality-of-life, often co-occur with multiple medical and psychiatric diagnoses, and are associated with a high risk of med...

    Authors: Rosiel Elwyn, Marissa Adams, Sam L. Sharpe, Scout Silverstein, Andrea LaMarre, James Downs and C. Blair Burnette
    Citation: Journal of Eating Disorders 2024 12:70
  5. Anorexia nervosa has one of the highest mortality rates of all mental illnesses. For those who survive, less than 70% fully recover, with many going on to develop a more severe and enduring phenotype. Research...

    Authors: Sarah Ramsay, Kendra Allison, Heide S. Temples, Luigi Boccuto and Sara M. Sarasua
    Citation: Journal of Eating Disorders 2024 12:53
  6.  For nearly 20% of patients diagnosed with Anorexia Nervosa (AN), the eating disorder (ED) is prolonged and becomes long-lasting. It has been reported that patients diagnosed with Severe Enduring Anorexia Nerv...

    Authors: Federica Marcolini, Alessandro Ravaglia, Silvia Tempia Valenta, Giovanna Bosco, Giorgia Marconi, Diana De Ronchi and Anna Rita Atti
    Citation: Journal of Eating Disorders 2024 12:48
  7. Anorexia Nervosa (AN) poses significant therapeutic challenges, especially in cases meeting the criteria for Severe and Enduring Anorexia Nervosa (SE-AN). This subset of AN is associated with severe medical co...

    Authors: Federica Marcolini, Alessandro Ravaglia, Silvia Tempia Valenta, Giovanna Bosco, Giorgia Marconi, Federica Sanna, Giulia Zilli, Enrico Magrini, Flavia Picone, Diana De Ronchi and Anna Rita Atti
    Citation: Journal of Eating Disorders 2023 11:208
  8. Approximately 20–30% of people with anorexia nervosa develop an enduring form of the disorder. In the present study a newly developed outpatient treatment unit for patients with severe and enduring anorexia ne...

    Authors: Monica Ålgars, Svetlana Oshukova and Jaana Suokas
    Citation: Journal of Eating Disorders 2023 11:150
  9. Whether or not to define ‘terminal anorexia nervosa’ has been a hotly debated topic in the eating disorders field recently. Being able to have open scientific debate on important topics such as this is essenti...

    Authors: Andrea Phillipou
    Citation: Journal of Eating Disorders 2023 11:145

Meet the Editors

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Paul RobinsonUniversity College London, UK

Professor Paul Robinson, MA, MD, FRCP, FRCPsych, SFHEA, is a Professor in the Medical Division at University College London.  He is also Consultant in Eating Disorders Psychiatry at The Orri-London clinic and honorary Consultant Psychiatrist at University College Hospital, London. He has co-written or co-edited books on Community Treatment of Eating Disorders (2006), Severe and Enduring Eating Disorders (2009), Critical Care for Anorexia Nervosa (2015) and Mentalization Based Therapy for Eating Disorders (MBT-ED) (2019). He is the principal author of the Medical Emergencies in Eating Disorders (MEED) guidance, 2022. In 2012 he launched an MSc degree course based in the UCL Division of Medicine in Eating Disorders and Clinical Nutrition, the only one of its kind. He is currently editor in chief of the new book: “Eating Disorders, a Comprehensive International view”, to be published soon by Springer.

Stephen Wonderlich: University of North Dakota, USA

Stephen Wonderlich, Ph.D., is a Chester Fritz Distinguished Professor, University of North Dakota School of Medicine & Health Sciences. He serves as Vice President of Research, Sanford. He has published widely in the literature. He currently sits on the Editorial Board for several professional journals, is a Past-President of the Academy for Eating Disorders, and was a member of the Eating Disorders Workgroup for DSM-5. He serves, or has served, on the Board of Directors for several eating disorders organizations, including the Eating Disorders Research Society, Academy for Eating Disorders, Eating Disorders Coalition, and the National Eating Disorders Association. He is the Principal Investigator for the Sanford Center for Biobehavioral Mechanisms of Eating Behavior, an NIH Center of Biomedical Research Excellence (COBRE).

Geneviève PepinDeakin University, Australia

A/Prof Pepin is an experienced mental health occupational therapist and a proficient academic. Built on almost 20 years’ work in the area of mental health and eating disorders in Canada and in Australia and including partnerships with national and international leaders in the field, A/Prof Pepin has established herself as a significant contributor to eating disorders research.

Her expertise and passion are in research co-produced with careers of people with an eating disorder, understanding the impact of eating disorders on function and the daily activities of those with an eating disorder and their family, and the development of innovative interventions promoting best health outcomes.

Her research is impactful and translational, leading to changes in practice and services as demonstrated by her invitation to join the Advisory Committee for the Development of the Australian Eating Disorders Research & Translation Strategy 2021-2031. She is a member of the executive group of the Australian Eating Disorder Research and Translation Centre. She is the co-lead of the Lived-Experience and Co-Production stream of the Centre and a member of the National Eating Disorders Research Consortium. In addition, A/Prof Pepin’s reputation as an occupational therapy scholar rests on a unique expertise and knowledge of ground-breaking interventions and conceptual model of practice that have influenced practice, research, and education in the field for decades.

A/Prof Pepin contribution to mental health and eating disorders initiatives includes her contribution to the National Strategy Eating Disorders Workforce Development Working Group, the Allied Health Profession Australia Mental Health Working Group, the National Eating Disorders Collaboration credentialing working group, the National Mental Health Workforce Strategy, and the National Mental Health Forum – Occupational Therapy Australia.

A/Prof Pepin believes in multidisciplinary approaches to understanding eating disorders and co-produced research and interventions. She believes in best practice and is interested in emerging knowledge and interventions about eating disorders.

Phillipa HayWestern Sydney University, Australia

Professor Phillipa Hay is a leading mental health researcher, educator, and practicing Psychiatrist. Her research has been translational, guided policy and practice, and award winning, e.g., in 2015 she received the Lifetime Leadership Award from the ANZ Academy for Eating Disorders, and in 2020 she was awarded the Royal Australian and New Zealand College of Psychiatrists (RANZCP) Senior Research Award. She laid the foundations for mental health programs in two new medical schools James Cook and Western Sydney.  She has a DPhil in Psychiatry from the University of Oxford and MD (Medicine) from University of Otago, is a Fellow of the RANZCP, and Fellow of the Academy for Eating Disorders (AED).

Stephen Touyz: University of Sydney, Australia

Stephen Touyz is an Emeritus Professor at the University of Sydney and Director of the Inside Out Institute, a joint partnership between the Sydney Local Health District and the University of Sydney. He is Editor in Chief of the Journal of Eating Disorders which he co-founded a decade ago. He is a past president of the Eating Disorders Research Society. He is a member of the Commonwealth Government of Australia’s Technical Advisory Group for Eating Disorders and a member of the steering committee of the National Eating Disorders Collaboration. He was presented with a leadership award in research by the Academy of Eating Disorders in 2012, the first ever Lifetime Achievement Award by the Australian and New Zealand Academy of Eating Disorders in 2014 and the Ian M Campbell Prize in Clinical Psychology from the Australian Psychological Society in 2014. He has edited/co-edited 6 books and published over 480 scholarly papers/book chapters.

About the Collection

Many people with eating disorders respond well to treatment but a proportion, sadly, do not and they may develop a longstanding form of the eating disorder which has been termed SEED. In this article Collection of the Journal of Eating Disorders we call for papers on this important topic. While any proposed paper will be considered,  we are particularly interested in the following areas: 1. Definitions of SEED, including how  it may be applied across different eating disorders, 2. Distribution and determinants of SEED, 3. Clinical features of SEED, including qualitative studies of different eating disorders of long duration and high severity, including descriptions of the functional impacts of SEED, 4. Treatment of SEED, including evidence based treatments for eating disorders and how patients with longstanding illness respond, and different approaches to the management of SEED including the Recovery model and sensory approaches. 5. Neuroscience and SEED, including the effects of neuromodulating therapies such as brain stimulation, 6. Prognosis of SEED, including end of life issues.

We will welcome submissions from early-stage investigators and those from occupational therapy, ethics, and other under-represented fields. All types of articles will be considered, including reviews, research papers, case reports, and commentaries.

Submission Guidelines

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This Collection welcomes all types of articles, including reviews, research papers, case reports, and commentaries. Should you wish to submit a different article type, please read our submission guidelines to confirm that type is accepted by the journal. Articles for this Collection should be submitted via our submission system, Snapp. During the submission process you will be asked whether you are submitting to a Collection, please select "Severe and Enduring Eating Disorders (SEED)" from the dropdown menu.

Articles will undergo the journal’s standard peer-review process and are subject to all of the journal’s standard policies. Articles will be added to the Collection as they are published.

The Editors have no competing interests with the submissions which they handle through the peer-review process. The peer-review of any submissions for which the Editors have competing interests is handled by another Editorial Board Member who has no competing interests.