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Articles

Using and abusing evidence in science and health policy

Edited by: Prof Timothy Caulfield

Collection published: 31 January 2013

Last updated: 28 February 2013

Evidence Use Abuse This series of articles investigates how evidence is used in a variety of health and science policy domains, specifically considering the ways in which it is has been used (or misused) and represented (or misrepresented) in relevant laws, policies and regulations, in addition to the numerous challenges and barriers to its use in policy development.

Articles published in this series were invited from delegates at the meeting "Using and Abusing Evidence in Science and Health Policy" held in Banff, Alberta on May 30th-June 1st, 2012. The conference organizers would like to thank the following companies who supported the meeting and part-funded some publication charges: Alberta Innovates - Health Solutions, the Alberta Cancer Foundation, the Allergy Genes and Environment Network (AllerGen), the Archon Genomics X-Prize presented by Express Scripts, the Canadian Breast Cancer Foundation - Prairies, NWT Region, the Cancer Stem Cell Consortium, Genome Alberta, the Interagency Advisory Panel on Research Ethics, the Stem Cell Network, the University of Alberta's Faculty of Law, and the University of Alberta's Killam Fund.

All articles have been independently prepared by the authors and have been subject to the standard peer review processes of the journals.

		Research article Bioethics in popular science: evaluating the impact of The immortal life of henrietta lacks on the biobank debate Matthew C Nisbet, Declan Fahy BMC Medical Ethics 2013, 14:10 (28 February 2013) Abstract \| Provisional PDF
		Debate “Media, politics and science policy: MS and evidence from the CCSVI Trenches” Daryl Pullman, Amy Zarzeczny, André Picard BMC Medical Ethics 2013, 14:6 (12 February 2013) Abstract \| Full text \| PDF \| PubMed
		Research article Genetic discrimination and life insurance: a systematic review of the evidence Yann Joly, Ida Ngueng Feze, Jacques Simard BMC Medicine 2013, 11:25 (31 January 2013) Abstract \| Provisional PDF \| PubMed \| Editor’s summary Evidence from a systematic review of genetic discrimination studies shows that individual cases of discrimination exist in the context of life insurance, but policy action cannot be justified at present due to limitations of the studies.
		Research article Emerging issues in paediatric health research consent forms in Canada: working towards best practices Edward S Dove, Denise Avard, Lee Black, Bartha M Knoppers BMC Medical Ethics 2013, 14:5 (30 January 2013) Abstract \| Full text \| PDF \| PubMed
		Debate Addressing the policy cacophony does not require more evidence: an argument for reframing obesity as caloric overconsumption Jacob J Shelley BMC Public Health 2012, 12:1042 (30 November 2012) Abstract \| Full text \| PDF \| PubMed
		Correspondence Is belief larger than fact: expectations, optimism and reality for translational stem cell research Tania Bubela, Matthew D Li, Mohamed Hafez, Mark Bieber, Harold Atkins BMC Medicine 2012, 10:133 (6 November 2012) Abstract \| Full text \| PDF \| PubMed \| Editor’s summary Tania Bubela et al. provide empirical evidence of a disconnect between the reality of progress in clinical application of stem cell therapies and public expectations, so the reporting of expected benefits and realistic timelines of such therapies should be made more transparent.

		Research article Bioethics in popular science: evaluating the impact of The immortal life of henrietta lacks on the biobank debate Matthew C Nisbet, Declan Fahy BMC Medical Ethics 2013, 14:10 (28 February 2013) Abstract \| Provisional PDF
		Debate “Media, politics and science policy: MS and evidence from the CCSVI Trenches” Daryl Pullman, Amy Zarzeczny, André Picard BMC Medical Ethics 2013, 14:6 (12 February 2013) Abstract \| Full text \| PDF \| PubMed
		Research article Genetic discrimination and life insurance: a systematic review of the evidence Yann Joly, Ida Ngueng Feze, Jacques Simard BMC Medicine 2013, 11:25 (31 January 2013) Abstract \| Provisional PDF \| PubMed \| Editor’s summary Evidence from a systematic review of genetic discrimination studies shows that individual cases of discrimination exist in the context of life insurance, but policy action cannot be justified at present due to limitations of the studies.
		Research article Emerging issues in paediatric health research consent forms in Canada: working towards best practices Edward S Dove, Denise Avard, Lee Black, Bartha M Knoppers BMC Medical Ethics 2013, 14:5 (30 January 2013) Abstract \| Full text \| PDF \| PubMed
		Debate Addressing the policy cacophony does not require more evidence: an argument for reframing obesity as caloric overconsumption Jacob J Shelley BMC Public Health 2012, 12:1042 (30 November 2012) Abstract \| Full text \| PDF \| PubMed
		Correspondence Is belief larger than fact: expectations, optimism and reality for translational stem cell research Tania Bubela, Matthew D Li, Mohamed Hafez, Mark Bieber, Harold Atkins BMC Medicine 2012, 10:133 (6 November 2012) Abstract \| Full text \| PDF \| PubMed \| Editor’s summary Tania Bubela et al. provide empirical evidence of a disconnect between the reality of progress in clinical application of stem cell therapies and public expectations, so the reporting of expected benefits and realistic timelines of such therapies should be made more transparent.