Table 3

Item descriptive statistics for Burden of Knowing (BK) and Family Connectedness (FC) scales (n = 243)
Scale & Items X SD Missing (%) Response Values Frequency
0 1 2 3 4
Burden of Knowing (BK) 24.8 8.4 9.5%
• Dwelling on carrier status (BK11_R) 3.1 1.1 0.8 5 24 36 65 111
• Difficulty modifying screening regime (BK14_R) 2.8 1.4 1.6 28 17 41 34 119
• Concerns with non-acceptance by others (BK15_R) 3.4 1.2 2.5 13 14 12 27 171
• Difficulty dealing with young people (BK17_R) 1.8 1.4 3.3 59 43 59 28 46
• Worry about young people’s future (BK18_R) 1.4 1.3 1.2 80 58 49 39 14
• Stress of cancer alters family relations (BK19_R) 2.8 1.3 1.6 17 33 39 40 110
• Screening reminder of personal risk (BK20_R) 2.2 1.5 1.2 50 37 44 39 70
• Concerns about impact on family relations (BK24_R) 3.3 1.2 0.4 13 15 24 25 165
• Worry about burden of cancer on family (BK25_R) 2.3 1.4 0.8 30 44 54 49 64
• Screening heightens cancer worry (BK27_R) 1.9 1.5 0.8 63 46 41 45 46
Family Connectedness (FC) 20.4 5.6 4.5
• Encourage young people to talk about cancer (FC16) 3.0 1.1 1.2 10 18 49 60 103
• Feeling supported facilitates acceptance (FC21) 2.9 1.2 0.4 13 21 41 77 90
• Easy to seek help from family (FC22) 3.0 1.2 0.8 13 18 34 67 109
• Important to openly discuss family cancer (FC23) 3.4 0.8 0.4 0 8 27 62 145
• Caring for others promotes personal acceptance (FC26) 2.3 1.4 1.6 37 31 50 66 55
• Relieved by availability of genetic testing (FC28) 2.9 1.2 1.6 10 21 42 66 100
• Supportive others promotes healthy behaviors (FC29) 3.0 1.1 0.4 11 16 33 78 104

Watkins et al.

Watkins et al. BMC Psychology 2013 1:7   doi:10.1186/2050-7283-1-7

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