Not just bricks and mortar: planning hospital cancer services for Aboriginal people
1 Winthrop Professor, Chair in Rural Health and Director, Combined Universities Centre for Rural Health, University of Western Australia, 167 Fitzgerald St, Geraldton, Western Australia 6530 Australia
2 Adjunct Professor, Centre for International Health, Curtin University, GPO Box U1987 Perth 6845 Australia
3 Post-doctoral Research Fellow, The Western Australian Centre for Cancer and Palliative Care and the Aboriginal Health Education and Research Group, Curtin Health Innovation Research Institute, Curtin University, Shenton Park Campus 10 Selby St Shenton Park 6008 WA Australia
4 Associate Professor, Aboriginal Health Education and Research Group, Curtin Health Innovation Research Institute, Curtin University, Kent Street, Bentley, Perth, Western Australia. 6102. Australia
5 Senior Research Fellow, Aboriginal Health Education and Research Group, Curtin Health Innovation Research Institute, Curtin University, Kent Street, Bentley, Western Australia. 6102. Australia
6 Centre for Cardiovascular and Chronic Care, University of Technology Sydney and Curtin University, Jones St, Broadway, 2007 NSW. Australia
BMC Research Notes 2011, 4:62 doi:10.1186/1756-0500-4-62Published: 14 March 2011
Aboriginal people in Australia experience higher mortality from cancer compared with non-Aboriginal Australians, despite an overall lower incidence. A notable contributor to this disparity is that many Aboriginal people do not take up or continue with cancer treatment which almost always occurs within major hospitals.
Thirty in-depth interviews with urban, rural and remote Aboriginal people affected by cancer were conducted between March 2006 and September 2007. Interviews explored participants' beliefs about cancer and experiences of cancer care and were audio-recorded, transcribed verbatim and coded independently by two researchers. NVivo7 software was used to assist data management and analysis. Information from interviews relevant to hospital services including and building design was extracted.
Relationships and respect emerged as crucial considerations of participants although many aspects of the hospital environment were seen as influencing the delivery of care. Five themes describing concerns about the hospital environment emerged: (i) being alone and lost in a big, alien and inflexible system; (ii) failure of open communication, delays and inefficiency in the system; (iii) practicalities: costs, transportation, community and family responsibilities; (iv) the need for Aboriginal support persons; and (v) connection to the community.
Design considerations and were identified but more important than the building itself was the critical need to build trust in health services. Promotion of cultural safety, support for Aboriginal family structures and respecting the importance of place and community to Aboriginal patients are crucial in improving cancer outcomes.