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Open Access Highly Accessed Research article

Key concepts in consumer and community engagement: a scoping meta-review

Pooria Sarrami-Foroushani1*, Joanne Travaglia12, Deborah Debono1 and Jeffrey Braithwaite1

Author Affiliations

1 Centre for Clinical Governance Research, Australian Institute of Health Innovation (AIHI), University of New South Wales (UNSW), Sydney, NSW 2052, Australia

2 School of Public Health and Community Medicine (SPHCM), University of New South Wales (UNSW), Sydney, NSW 2052, Australia

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BMC Health Services Research 2014, 14:250  doi:10.1186/1472-6963-14-250

Published: 13 June 2014

Abstract

Background

Although consumer and community engagement (CCE) in health care is receiving increasing attention, research and practice in this area are hampered by the variability of concepts and terminology commonly employed. This scoping meta-review aims to identify key CCE concepts and examine terminology used to describe them.

Methods

In a scoping meta-review, an extensive list of 47 phrases and 11 Medical Subject Headings (MeSH) was used to undertake a comprehensive and systematic search in PubMed Central, Embase, EBM reviews, CINAHL, APAPsycNET, and Scopus.

Results

59 systematic reviews met the selection criteria and were included in the final analysis. The analysis identified nine different concepts related to CCE: shared decision making, self-management, CCE in health care systems, community-based health promotion, providing access to health care, rehabilitation, participation in research, collaboration in research design and conduct, and peer support. The identified concepts differ from each other in many aspects including the aim of the activity, the role of consumers and the type of professionals’ involvement. Each concept was described by a range of terms, with some terms shared by different concepts. In addition, two overlapping concepts of patient-centeredness and patient empowerment were recognised.

Conclusions

This study describes CCE-related key concepts and provides new insight into their relationship with different CCE-related terms. Identification of key CCE-related concepts and terms will be useful to focus future studies and initiatives and enhance production of CCE-related evidence.

Keywords:
Consumer and community engagement (CCE); Concepts; Shared decision making (SDM); Self-management; Peer support