Table 2

Participant characteristics for handbook development Stage 2 (Phases 1 and 2)
Patient characteristics, n(%) All participants (Phases 1 & 2) Phase 1 participants Phase 2 participants
(n=48) (n=12) (n=36)
Age
Mean [Range] 59 [33–85] 58 [46–71] 60 [33–85]
Gender
Male 24 [50%] 8 [67%] 16 [44%]
Race/Ethnicity
African American 41 [85%] 11 [92%] 30 [83%]
non-African American 7 [15%] 1 [8%] 6 [17%]
Education
Less than a high school degree 9 [19%] 4 [33%] 5 [14%]
High school degree/GED 17 [35%] 5 [42%] 12 [33%]
Some college 14 [29%] 3 [25%] 11 [31%]
Bachelor’s degree 6 [13%] 0 [0%] 6 [17%]
Graduate or professional school 2 [4%] 0 [0%] 2 [5%]
Treatment Group
Pre-ESRD 15 [31%] 3 [25%] 12 [33%]
Hemodialysis 22 [46%] 9 [75%] 13 [54%]
Home Hemodialysis 4 [8%] --- 4 [17%]
Peritoneal Dialysis 7 [15%] --- 7 [29%]
Knowledge of Kidney Disease§
Extensive knowledge 4 [8%] 1 [8%] 3 [8%]
A great deal of knowledge 20 [42%] 4 [33%] 16 [44%]
Some knowledge 18 [38%] 7 [59%] 11 [31%]
Limited to no knowledge 5 [10%] 0 [0%] 5 [14%]
Don’t know 1 [2%] 0 [0%] 1 [3%]
Literacy
3rd grade and below 5 [10%] 1 [8%] 5 [14%]
4th to 6th grade 4 [8%] 2 [17%] 2 [5%]
7th to 8th grade 14 [29%] 6 [50%] 8 [22%]
9th grade and above 25 [52%] 3 [25%] 22 [61%]
Numeracy
Risk numerate 14 [30%] 3 [25%] 11 [31%]
Cognition¥
Cognitive impairment 10 [21%] 3 [25%] 7 [19%]

§ Based on self-report.

¥ Time of 273 seconds or longer indicates a cognitive deficiency, 2 participants missing data from Phase 2.

Considered risk numerate if 3 of 3 risk numeracy questions answered correctly, 1 participant missing from Phase 2.

Ameling et al.

Ameling et al. BMC Medical Informatics and Decision Making 2012 12:140   doi:10.1186/1472-6947-12-140

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