Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue

doi:10.1186/1472-6939-9-18

BMC Medical Ethics

Volume 9

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Willison DJ
Swinton M
Schwartz L
Abelson J
Charles C
Northrup D
Cheng J
Thabane L

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Swinton M
Schwartz L
Abelson J
Charles C
Northrup D
Cheng J
Thabane L
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Research article

Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue

Donald J Willison¹^,2 , Marilyn Swinton³ , Lisa Schwartz¹^,4 , Julia Abelson¹^,5 , Cathy Charles¹^,5 , David Northrup⁶ , Ji Cheng⁷ and Lehana Thabane¹^,2

¹Department of Clinical Epidemiology & Biostatistics, McMaster University, Hamilton, Canada

²Centre for Evaluation of Medicines, St. Joseph's Healthcare, Hamilton, Canada

³School of Nursing, McMaster University, Hamilton, Canada

⁴Department of Philosophy, McMaster University, Hamilton, Canada

⁵Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Canada

⁶Institute for Social Research, York University, Toronto, Canada

⁷Biostatistics Unit, St. Joseph's Healthcare, Hamilton, Canada

author email corresponding author email

BMC Medical Ethics 2008, 9:18doi:10.1186/1472-6939-9-18


Published:	19 November 2008

Additional files

Additional File 1:

Pre-dialogue survey. Questionnaire given to participants prior to the dialogues where they rated their level of support for each of the three general approaches to use of personal information for research and the 5 specific research scenarios.

Format: DOC Size: 40KB Download file

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Additional File 2:

Post-dialogue survey. Questionnaire given to participants following the dialogues where they rated their level of support for each of the three general approaches to use of personal information for research and the 5 specific research scenarios.

Format: DOC Size: 57KB Download file

This file can be viewed with: Microsoft Word Viewer

Additional File 3:

Comparison of attitudes toward privacy and health research of dialogue participants recruited through the full and short surveys. Comparison of attitudes toward privacy and health research of dialogue participants recruited through the full and short surveys. The purpose of this is to compare for selection biases.

Format: DOC Size: 91KB Download file

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