Open Access Research article

Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue

Donald J Willison12*, Marilyn Swinton3, Lisa Schwartz14, Julia Abelson15, Cathy Charles15, David Northrup6, Ji Cheng7 and Lehana Thabane12

Author Affiliations

1 Department of Clinical Epidemiology & Biostatistics, McMaster University, Hamilton, Canada

2 Centre for Evaluation of Medicines, St. Joseph's Healthcare, Hamilton, Canada

3 School of Nursing, McMaster University, Hamilton, Canada

4 Department of Philosophy, McMaster University, Hamilton, Canada

5 Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Canada

6 Institute for Social Research, York University, Toronto, Canada

7 Biostatistics Unit, St. Joseph's Healthcare, Hamilton, Canada

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BMC Medical Ethics 2008, 9:18  doi:10.1186/1472-6939-9-18

Published: 19 November 2008

Additional files

Additional File 1:

Pre-dialogue survey. Questionnaire given to participants prior to the dialogues where they rated their level of support for each of the three general approaches to use of personal information for research and the 5 specific research scenarios.

Format: DOC Size: 40KB Download file

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Additional File 2:

Post-dialogue survey. Questionnaire given to participants following the dialogues where they rated their level of support for each of the three general approaches to use of personal information for research and the 5 specific research scenarios.

Format: DOC Size: 57KB Download file

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Additional File 3:

Comparison of attitudes toward privacy and health research of dialogue participants recruited through the full and short surveys. Comparison of attitudes toward privacy and health research of dialogue participants recruited through the full and short surveys. The purpose of this is to compare for selection biases.

Format: DOC Size: 91KB Download file

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