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Open Access Highly Accessed Research article

What "best practice" could be in Palliative Care: an analysis of statements on practice and ethics expressed by the main Health Organizations

Gaia Barazzetti15, Claudia Borreani2, Guido Miccinesi3* and Franco Toscani4

Author affiliations

1 Department of Philosophy University "Vita-Salute San Raffaele" Milan - Italy

2 Psychology Unit National Cancer Institute Milan - Italy

3 ISPO Institute for the study and prevention of cancer Florence - Italy

4 Scientific Director Research Institute for palliative medicine "Lino Maestroni" Cremona - Italy

5 Current Address: University of Lausanne, EPFL College of Humanities, Switzerland

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Citation and License

BMC Palliative Care 2010, 9:1  doi:10.1186/1472-684X-9-1

Published: 7 January 2010

Abstract

Background

In palliative care it would be necessary to refer to a model. Nevertheless it seems that there are no official statements which state and describe that model. We carried out an analysis of the statements on practice and ethics of palliative care expressed by the main health organizations to show which dimensions of end-of-life care are taken into consideration.

Methods

The official documents by the most representative health organisations committed to the definition of policies and guidelines for palliative and end-of-life care had been considered. The documents were analysed through a framework of the components of end-of-life care derived from literature, which was composed of 4 main "areas" and of 12 "sub-areas".

Results

Overall, 34 organizations were identified, 7 international organisations, and 27 organisations operating on the national level in four different countries (Australia, Canada, UK and United States). Up to 56 documents were selected and analysed. Most of them (38) are position statements. Relevant quotations from the documents were presented by "areas" and "sub-areas". In general, the "sub-areas" of symptoms control as well as those referring to relational and social issues are more widely covered by the documents than the "sub-areas" related to "preparation" and to "existential condition". Indeed, the consistency of end-of-life choices with the patient's wishes, as well as completion and meaningfulness at the end of life is given only a minor relevance.

Conclusions

An integrated model of the best palliative care practice is generally lacking in the documents. It might be argued that the lack of a fixed and coherent model is due to the relevance of unavoidable context issues in palliative care, such as specific cultural settings, patient-centred variables, and family specificity. The implication is that palliative care staff have continuously to adapt their model of caring to the specific needs and values of each patient, more than applying a fixed, although maybe comprehensive, care model.