Table 1

Study schedule

Measure

Source

Baseline

6 weeks

6 months

Subsequent hospital admission

Time of death

3 months post bereavement


Carer related


KD-10

Carer

x

x

x

x

Satisfaction with end of life care in dementia scale

Carer

x

Decision satisfaction inventory

Carer

x

x

x

EQ 5D

Carer

x

x

x

x

Visual analogue scale

Carer

x

x

x

x

Economic data

Carer

x

x


Patient related


Pain scale measurements

Patient

Painful interventions scale

Patient care records

x

x

x

Other interventions

Patient care records

x

x

x

Quality of end of life care

Patient care records

x

x

Adherence to LCP

Patient care records

x

x


System related


Numbers choosing to make ACP

Patient care records

x

x

Adherence to advance care plan

Patient care records

x

Referrals to palliative care team

Patient care records

x

x

x

Unplanned admissions

Patient care records

x

x

x

Place of death

Patient care records

x

Economic data

Patient care records

x

x

x


Sampson et al. BMC Palliative Care 2008 7:8   doi:10.1186/1472-684X-7-8

Open Data