Table 1

Public involvement in different stages of research process

PIR Involvement

Level of Involvement

Study Design

Input on grant proposal and development of method for public involvement within the study

Steering Committee

Regular attendance

Review of study documentation

Information leaflets, consent forms

Interview guides (residents)


Explanation of information leaflet and consenting process to care home residents

Data analysis

Reading transcripts, identification of key themes.

Meeting to discuss findings/research team

Running discussion groups with care home residents to discuss emergent themes


Commenting on final report. Report to funders.

Co-presentation and sole presenters at National Care Home Forum

Goodman et al. BMC Palliative Care 2011 10:20   doi:10.1186/1472-684X-10-20

Open Data