Email updates

Keep up to date with the latest news and content from BMC Public Health and BioMed Central.

Open Access Research article

Perceptions of quality of life among Ugandan patients living with HIV: a qualitative study

Doris Mutabazi-Mwesigire1*, Janet Seeley2, Faith Martin3 and Achilles Katamba1

Author Affiliations

1 Makerere College of Health Sciences, Makerere University, P.O. Box 7062, Kampala, Uganda

2 MRC/UVRI Uganda Research Unit on AIDS, P.O. Box 49, Entebbe, Uganda

3 Department of Psychology, University of Bath, Bath, UK

For all author emails, please log on.

BMC Public Health 2014, 14:343  doi:10.1186/1471-2458-14-343

Published: 10 April 2014

Abstract

Background

Ugandans have endured the HIV epidemic for three decades. Now, with the availability of antiretroviral therapy (ART) and early diagnosis, those living with HIV can live longer and can enjoy the same life expectancy as the rest of the Ugandan population. This emerging trend necessitates the assessment of quality of life, alongside other patient outcomes, of those undergoing therapy, alongside other patient outcomes. While major strides have been made in developing measures of quality of life in the developed world, there remains a paucity of evidence from resource-limited settings. This challenge is further complicated by the contentious definition of quality of life, which is highly subjective and varies between individuals. In this paper, we aim to identify the determinants of quality of life for people living with HIV in a Ugandan context to contribute to the chronic care model for persons living with HIV/AIDS.

Methods

Twenty HIV-positive participants took part in in-depth interviews at an urban clinic, with follow-ups at three and six months. Ten patients were on ART and ten not on ART. All interviews were transcribed and translated for analysis. Data were analysed manually using the framework approach to content analysis.

Results

Individuals reported on four aspects of quality of life: liveability of the environment, utility of life, life ability of a person and appreciation of life. Respondents described multiple expectations and expressed hope for their future. However, many still suffered from stigma, fears of disclosure and poverty, which negatively affected their quality of life.

Conclusions

Individuals living with HIV receiving treatment or in care experienced an improved quality of life in this setting, although the situation for many remains precarious.

Keywords:
Quality of life; Resource-limited settings; Qualitative study; HIV/AIDS