Table 1

Condition-specific measures
Instrument Completed by Captures Domains Measured at
ASD
Social responsiveness scale [42] Parent Severity of ASD characteristics Awareness Baseline
Cognition
Communication
Motivation
Mannerisms
Strengths and difficulties questionnaire [43,44] Parent and young person Emotional and behavioural problems Emotional symptoms Baseline
Conduct problems
Hyperactivity
Peer problems
Pro-social behaviour
Hospital anxiety and depression scale [45] Young person Severity of mental health problems Anxiety Depression All contacts
Children’s global assessment scale [46] Clinician Functional impairment Baseline
Cerebral palsy
Severity of impairments Research assistant Impairments Type of cerebral palsy, gross motor function, upper limb function, intelligence, hearing, vision, communication, feeding, seizures Baseline
Unmet health needs Parent and young person All contacts
Diabetes
Research assistant Diabetes control Age at diagnosis Baseline
Research assistant HbA1c averaged over last year, number of admissions for ketoacidosis over last year, result of annual eye examination All contacts

Colver et al.

Colver et al. BMC Public Health 2013 13:675   doi:10.1186/1471-2458-13-675

Open Data