Table 1

List of variables, measuring instruments and data sources
Variable Instrument Data collection method
Health outcome indicators
HbA1C DCA Vantage (Siemens) Blood samples taken by trained field researchers, analysed by laboratory staff at location. Results on a patient record form
Blood pressure Electronic sphygmomanometer from certified manufacturer, study Standard Operating Procedure (SOP) By trained field researchers, on patient record form
BMI Height and weight measured by research staff, study SOP By trained field researchers, on patient record form
Waist/Hip ratio Conventional measuring tape according to study-SOP By trained field researchers, on patient record form
Diabetic foot lesions (nr) Number of active wounds on both feet, detected through systematic examination by trained research staff By trained field researchers, on patient record form
Access to care indicators
Attendance of DSME and medical care Self-report over 12-month period: number of educator-contacts (check DSME patient records), visits to medical doctor, kidney-function test Interviews with paper questionnaire, by researchers (Q28, 30, 31)
Total medical expenditure Self-report Interviews with paper questionnaire, by researchers (Q32 a+b)
Total time for h care visits Self-report Interviews with paper questionnaire, by researchers ( Q32c+d)
Quality of support indicators
Perceived Quality of Care DSME PACIC score (Glasgow et al. [33]) Interviews with paper questionnaire, by researchers (Q33a-t)
DSME needs and services 6-elements questionnaire, inspired by Diabetes Care Profile [34] Interviews with paper questionnaire, by researchers (Q34+35)
Enablement through DSME Patient enablement score [35] Interviews with paper questionnaire, by researchers (Q36)
Empowerment indicators
Level of knowledge on diabetes (care) Diabetes Knowledge Score, adapted from Brief Diabetes Knowledge Test & the Diabetes Knowledge Questionnaire ([36,37]) Interviews with paper questionnaire, by researchers (Q13)
Attitude towards diabetes Attitude scale Diabetes Care Profile [34] Interviews with paper questionnaire, by researchers (Q14)
Feeling of control Control scale from Diabetes Care Profile [34] Interviews with paper questionnaire, by researchers (Q15a-d)
Self-management behaviour
Adherence to glucose monitoring & control Self-report of last time self-monitoring, professional monitoring, medication taking Interviews with paper questionnaire, by researchers (Q16-25)
Adherence to exercise & diet Self-report Interviews with paper questionnaire, by researchers (Q38/37, 41)
Process indicators
Number of SMS sent (ProjIC) to participant Database that is used to send out ProjIC Assessment by the project manager
Number and type (call or SMS) of PatIC to educators Telephone provider records Assessment by the project manager
intervention cost at DSMS programme level Extraction from data from project documents Collected by country research team
Context characteristics
Diabetes prevalence, phone penetration, literacy rate, DSME programme characteristics extraction from data from project documents, country-related publications and other secondary data Collected by country research team
Knowledge and professional habits of diabetes care providers Provider Profile, Diabetes Management Practices and Brief Diabetes Knowledge & Practice Test (adapted from ([38]) Written self-administered questionnaire to health providers

van Olmen et al.

van Olmen et al. BMC Public Health 2013 13:423   doi:10.1186/1471-2458-13-423

Open Data