Table 3

Maternal disclosure to HIV-negative children
ID Sex Age Prior disclosure Intervention disclosure Mother report of child's reaction to disclosure Mother reported questions asked by child following disclosure Mother reported what she enjoyed most about disclosure
01 M 6 No Virus Confused How did you get infected; I haven't seen you go to clinic, when do you go to clinic? What do the nurses and doctors do at clinic? I really enjoyed the questions the child asked me
02 M 7 No HIV Frightened Emotional Will I get HIV; how can I be safe from HIV? I enjoyed the peace that I felt after
03 F 6 No HIV Confused What is HIV and what should you be doing at clinic about it? I enjoyed the materials, because they are so positive about me, even when I am getting sick, I can give them love, the messages are good
04 F 6 No Virus Calm Does a person with this virus become very slim? I enjoyed that she seemed to understand, like she understands that a person with HIV does not have AIDS
05 F 8 No Virus Confused How did you get the infection? When can I go to clinic? I enjoyed that the child asked questions I could answer
06 M 8 No Virus Calm No question I enjoyed playing cards with the child
07 F 7 No HIV Confused Is this what caused my dad to die?; is this why we can’t visit dad's family anymore? I enjoyed most going through our family life line
08 M 6 Yes HIV Calm No question I enjoyed every moment of it and that he is the first of my children to know the truth, and I know he is going to come back and ask me about the father soon, then it will all be open
09 M 7 No HIV Confused What is that lion doing in the house with the people in the storybook? The joy that the storybook brought for the child is what I most enjoyed and I enjoyed being able to give a deep explanation of HIV
10 F 8 No HIV Calm No question I enjoyed that my child learnt that if a person is sick they will get help from the clinic
11 M 7 No HIV Calm Are you going to die; Is HIV curable? I enjoyed that I was the one who was able to teach him and that he understood it all
12 M 7 No HIV Calm No question The fact that my child understood and we had a chance to talk
13 F 6 No HIV Calm No question I enjoyed all the disclosure steps, they impressed me a lot
14 F 6 No HIV Calm Why do you have to take pills always? I enjoyed all the steps and I feel more confident to talk about my illness now
15 F 8 Yes HIV Calm Is this what happened to my father? Did you love my father? How did you get the HIV, did you get it from my father or another man? Would my father be alive if he took medicine? I really enjoyed everything about doing disclosure
16 M 7 No Virus Calm Frightened No question I enjoyed the whole thing from the beginning to the end
17 M 8 No Virus Confused Do all viruses kill people? Are you going to die from the virus? Will I be left with no parents? I enjoyed that my child was interested and listened to me
18 M 7 No Virus Calm Does my niece who takes pills have this Virus also? Telling him was important for him to know, it was exciting and I felt good, I felt at peace for no longer keeping it from him
19 M 6 No Virus Calm Confused Do I have a virus now? Should I eat more vegetables? I enjoyed our talk, and it brought back hope to me as I was talking to him
20 M 6 Yes Virus* Calm What is AIDS, is it the same as a virus? Does my stepfather have it? Did my father have it before he died; Are ARVs the same as the tablets you showed me on the body map? Does AIDS ever get finished in the body? I enjoyed and I like the fact that he was so quick to understand, he is clever
21 F 6 No Virus* Calm What is this virus called? I enjoyed using all the materials
22 M 7 No Virus Calm No question I enjoyed most that my child understood most of what we did, I wasn't expecting it
23 F 7 Yes Virus Calm Confused No question I enjoyed having a chance to talk about my status
24 F 7 Yes Virus Calm No question I enjoy the materials because of the good messages it brings to me and my children

*In cases where mother undertook disclosure using words Virus and child’s questions led to a discussion on HIV or AIDS using those words, disclosure is listed as partial given that mother-led disclosure was initially partial.

Rochat et al.

Rochat et al. BMC Public Health 2013 13:147   doi:10.1186/1471-2458-13-147

Open Data