Table 4

Work of Care Resources/Constraints

Category

Codes

Papers


CHILD

Gender

How child's gender affects the situation

[14,17,37]

Disease

Diagnosis and prognosis

[24,32,37,41,45,60]

Severity, symptoms, and child's quality of life

[14,17,20,31,32,41,45,51,56]

Episodic quality of illness and uncertainty

[41,42,49,57]

Medical care

Type of technology or equipment

[31,42,45,52,58]

Frequency of treatments

[32,56]42

Age

Newborns, children, and adolescents

[14,15,17,33,45]

Transitioning to Adult Care

[24,27]

Behavior

Cognitive and emotional function/expression

[14,32,45]

Functional ability/activity limitations

[14,32,45,61]

Location

Home, hospital, or elsewhere

[14,17,20,25,31,37,47,51,58]

PARENT

Gender roles

How the roles of mothers and fathers differ

[14,30,31,37,41,49,52,56,59,61]

Mental health

Emotions, quality of life, and stress

[14,20,31,32,34,36-38,40,41,43,45,51,52,55,59,61,62]

Personality

Hardiness, self-esteem, and coping style

[56,57,59,61,63]

Physical health

Sleep, immune function

[33,55,58]

Knowledge

Medical and parenting skills and experience

[21,47]

Education level

[34,39]

Social support

Availability of friends and family

[17,31,32,57-59,61,63]

FAMILY

Family structure

Family cohesion, including marital dynamics

[35,38,56,58,59,63]

Single parents

[14,31,34]

Step parents and foster parents

[45,49]

Siblings

[14,32,35,52,58]

Finances

Employment, income, and expenses

[17,31,32,34,36,37,47,55,56,58,60]

Insurance and eligibility for services

[17,45,49,51,60]

SOCIETY

Minority status

Race, ethnicity, language, culture, and SES

[15,28,47,50,51]

Geographic locale

Different regions, countries. Immobility.

[45,47,50,56,61]

Attitudes and norms

Disability and disease in childhood

[25,28]

Parental responsibility and gender norms

[24,25,28,41,47,49]

Health services

Availability of care facilities and providers

[23,24,31,50]

Awareness of available services

[32,45]

Political system

Government policies and funding

[17,31,34,36,45,47,50,56,58]


Hexem et al. BMC Pediatrics 2011 11:95   doi:10.1186/1471-2431-11-95

Open Data