Table 3

Categories reflecting overall changes in perceived health


(Original text)

BEFORE diagnosis and initiated treatment


AFTER diagnosis and initiated treatment


Changes in perceived health


"I felt good before and I felt good after, so this wasn't a

big change for me."

Boy, Focus group discussion

Perfectly healthy (A)

Nothing was wrong (A+P)

Happy and healthy as anyone else (P)

No positive change

(A) No difference in well-being (P)

Stomach ache if eating gluten (A)

Healthy as anyone else with

no positive change

"I thought that I was pretty energetic and all, but when I found out about

it and started eating like this, I've noticed that I have become much

more energetic than I was before."

Boy, Focus group discussion

Nothing was wrong (A+P)

Thought it was personality (P)

Did not like bread (A)

Avoided food like bread and pasta (P)

Feeling better (A)

Improvement in well-being (P)

Everything fell into place (A+P)

Retrospectively recognizing an


"With the CD-diagnosis we got an explanation to her frequent problems

with stomach ache, vomiting without reasons, long intense infections,

her tiredness, and that she looked so worn. She is much happier and more energetic now."

Mother to a daughter, Narrative

Having some health problems (A)

Several signs of illness (P)

Having a different mood (A+P)

Something was wrong (P)

Feeling better (A)

Improvement in well-being (P)

Not that angry anymore (A+P)

A NEW child (P)

Something was wrong and then

changed to the better

Quotations illustrating the grounding of theoretically constructed subcategories, reflecting understanding of symptoms and perceived health before and after diagnosis, as described by adolescents (A) and their parents (P), which finally are grouped into categories reflecting overall changes in perceived health.

Rosén et al. BMC Pediatrics 2011 11:32   doi:10.1186/1471-2431-11-32

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