Table 2

Characteristics of data sources employed in the DEcIDE patient outcomes in end stage renal disease study
Data source Participants Years Setting Data collection Linkages
National registry (USRDS*) 428,411 incident dialysis patients 2006 -2009 Retrospectively identified cohort Medicare Claims National Death Files; Medicare Part D prescription drug data
Dialysis Clinic, Inc. (DCI) 45,124 incident dialysis patients 2003 -2010 Retrospectively identified cohort Clinical Data National Registry (USRDS); National Death Files; Medicare Part D prescription drug data
Choices for Healthy Outcomes in Caring for Patients with ESRD (CHOICE) 1,041 incident dialysis patients 1995 -2009 Prospective Cohort Study Primary Collection of Clinical Data, Questionnaires National Registry (USRDS); National Death Files
Cleveland Clinic Foundation Chronic Kidney Disease Registry 53,399 patients with chronic kidney disease 2005-2009 Retrospectively identified cohort Clinical Data National Registry (USRDS); National Death Files

*USRDS=United States Renal Data System.

Boulware et al.

Boulware et al. BMC Nephrology 2012 13:167   doi:10.1186/1471-2369-13-167

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